Cerebral Palsy

Mobility

Getting around safely is a primary concern whatever age you are. Whatever decisions you make about your mobility, remember to review them regularly and seek out the financial support you’re entitled to in order to get the equipment and aids that will suit you best.

Using a wheelchair or mobility aid

Getting around safely gets harder as you get older. If you speak to most older people with cerebral palsy they’ll tell you they distinctly remember the time when they began using a wheelchair or mobility aid or the first time, and what circumstances led up to that point. For some it’s the result of a fall or stay in hospital, for others it’s a conscious choice.

  • What’s most important in the context of your life? For example, would using a wheelchair or using a walking aid be less restrictive than walking slower? Or do you feel walking would give you less restrictions?
  • Are you walking now but feel you want to build your confidence? Adult therapy could help you work on areas of concern.
  • If you’re using a wheelchair or aid how is it working out? Is it the right one for you?
  • Would like to regain your mobility?

Reducing pain

Chronic pain is all consuming and can make life very difficult indeed. Changing pain can be a long process and it does require commitment. Your GP can refer you to a specialist pain clinic, or you may decide to try therapy as a way to tackle the root cause.

An example:

Bobath Scotland worked with someone who sat in a particular position at a computer all day in her wheelchair. She had been struggling with pain in her middle back for a long time and was fed up taking painkillers.

The treatment plan involved working on the stiffer areas where movement was lost. A new style wheelchair was found that would suit better suit, and the client was advised to take regular breaks from her screen. This would allow her body a chance to relax and move in different ways throughout the day. She is now pain-free.

What kind of help is available?

Care Information Scotland offers comprehensive information on your right access to self-directed support. This is available through your local council’s social care department and can be used in many ways, including buying or accessing mobility equipment. If you are unhappy with your current situation or mobility aids, ask for an assessment of care, and don’t forget you are entitled to regular reviews.

Bobath Scotland are also happy to speak to anyone who has a query about the management of cerebral palsy in adults. They offer a free initial consultation and reduced rates through the Helping Hands scheme.

Find out more

Capability Scotland have produced a comprehensive guide on mobility services in Scotland including Motability, the blue badge scheme and accessible car hire.

Disability Information Scotland also provides a series of detailed information guides on all topics relating to mobility, from benefits and access, to aids and equipment.

Care Information Scotland can provide you with further details on Care Assessments.

Self-Directed Support is a Scottish Government website with comprehensive information and FAQs.

Elaine's Story

“I was blessed with incredible parents. They found creative ways to help me become independent.”

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