Cerebral Palsy

Cerebral Palsy Scotland FaceBook group is two years old!

By Jill Clark, Communications Assistant, Bobath Scotland.

The Cerebral Palsy Scotland FaceBook group for adults is two years old on 25 July. The group now has over 140 members.

Bobath Scotland Sponsored Walk 2019

The group has had four get togethers in Bobath over the last two years.

As I am an adult with cerebral palsy and through working at Bobath I felt that there wasn’t any support network for adults with cerebral palsy, so that was why I made the group - to build up a support network for adults with CP. Like most things, the group got bigger with time.

As it was just an online group at the start some members were saying that it would be good to meet up with everyone from the group in person. So since the group was set up we have had four get togethers - two Christmas get togethers and two summer get togethers, which all were a great success.

The first get together that we had was in December 2017, this was mainly a shared lunch and gave people a chance to mix with other adults with CP. The next get together that we had was in June 2018. This was a great get together - at this one we had a presentation from one of Bobath’s physiotherapists and also we had people from Birds of Paradise Theatre Company.

The third get together that we had was in December 2018. At this get together we had two guest speakers who have cerebral palsy themselves, speaking about their own experiences of cerebral palsy, and also we had a quiz. Our fourth get together was in June just there. At this get together we had an employment workshop from Inclusion Scotland and also we had a Boccia session hosted by Scottish Disability Sport.

I think having this group and these get togethers is a really great thing to have, because when you have a disability you can feel that it is just yourself, so having a network like Cerebral Palsy Scotland FaceBook group and get togethers does have benefits. For example, if someone has a question about something they can ask in the group and other people might help. Going to a get together also gives people a chance to mix with other people with cerebral palsy and to meet new friends. I know there is some disabled people that don’t have any contact with other disabled people so that is where this group comes in really handy.

For the future of the group I hope that it gets even bigger and will continue to be a support network for many adults who have cerebral palsy. With the get togethers I hope there will be more to come and also, as all of our get togethers have been during the day I hope to plan a social evening event for the group like a disco.

Over all I am so glad that I am involved in this group because, as I have cerebral palsy myself I know it can be difficult, especially when you haven’t got anyone around you with cerebral palsy too. Having that network of people who are the same as you does help, and the get togethers are a great way to meet new people too.

Take part in the Cerebral Palsy Scotland FaceBook group for adults here.