Cerebral Palsy

Speakers


Louise White (Conference Chair)

Louise White

Louise is a broadcaster and friend of Bobath Scotland.







Richard Davenport

Chair of National Advisory Committee for Neurological Conditions (NACNC)

Richard Davenport

As well as my role as Chair of NACNC, I am a Consultant Neurologist at the Western General Hospital and Royal Infirmary of Edinburgh, and an Honorary Senior Lecturer at the University of Edinburgh. Since 1999, I have also acted as a Speciality Advisor on Neurology to the Chief Medical Officer.  

I qualified from Nottingham in 1987, completed general medical training in Stoke-on-Trent, moved to Edinburgh in 1992, and after my DM thesis in stroke spent a year in Australia, before returning to Edinburgh as one of the last Senior Registrars. I was appointed consultant in 1999.

Whilst very much a general neurologist, I have dabbled in various sub-specialties over the years; I undertake first seizure, movement disorder, MND and HD clinics in addition to general neurology. 



Elaine Boyd

Trustee/Treasurer Bobath Scotland and Associate Director of Audit Quality and Appointments, Audit Scotland

Elaine Boyd

I joined the Board at Bobath Scotland 4 years ago. Previously I was a Trustee at Glasgow’s Riding for the Disabled Association. I have Cerebral Palsy and a strong commitment to improving services for people with CP. It is great to use my financial skills for something I am passionate about.

I trained in the private sector and became a Chartered Certified Accountant (ACCA). I currently represent the public sector on the ACCA Scotland Committee. I have had a varied career in both the private and public sectors. Upon qualifying I moved to the NHS where I worked as a hospital finance manager across Argyll and Clyde. For the past 16 years I have been working at Audit Scotland in a variety of roles with a firm focus on quality and continuous improvement in public services.


Jill Clark

Communications Assistant, Bobath Scotland

Jill Clark

I am a Communications Assistant at Bobath Scotland where I do lots of different things such as social media and I run a group for adults with Cerebral Palsy. Outside of Bobath I do a lot of campaigning for Changing Places toilets and for AAC. I was very involved in making AAC the law and I am trying to get more Changing Places toilets in Glasgow and beyond.

I have Cerebral Palsy therefore I am in a wheelchair and talk through a Communication device. My Communication device is called Accent 1400 and I use a tracker dot to access my programme on my device. The dot is on my head.


Kirsty Colquhoun

Consultant Geriatrician, Greater Glasgow and Clyde

KirstyColquhoun

I went to medical school at the University of Glasgow, graduating in 2006, I also took a year out of my medical studies to gain a Bachelor of Science degree in pharmacololgy. I was appointed as a consultant geriatrician in Greater Glasgow and Clyde in 2015. I work in Glasgow Royal Infirmary, Gartnaval General Hospital and the Beatson. My job is varied, delivering care to the older adult in a variety of settings, but my specialist interest is developing cancer services for the older adult. We are also increasingly looking after adults over 65 who have cerebral palsy. In 2016 I was appointed a fellow of the Royal College of Physicians and Surgeons, and I also have roles within the British Geriatric Society and lecturing at the University.

I have cerebral palsy in the form of Spastic Diplegia. I received Bobath therapy as a child. I have been involved with the teen academy and this year doing some (crazy but fun) open water swims to fundraise for Bobath Scotland - including a 6.5km swim of the length of Loch Lubnaig.


Gavin Drysdale

Student and Athlete

Gavin Drysdale

I am delighted to be joining the panel session to discuss transitioning into adulthood at this year’s Cerebral Palsy Conference. As someone who is about to make the transition from school into further education myself, I understand the challenges involved in making that transition. I believe transitioning should be an exciting adventure and not a daunting one.

I have competed internationally in RaceRunning for a number of years. I have been lucky enough to travel the world with the sport. I currently hold the world records for the 100m, 200m, 400m, 800m & 1500m in my classification. I recently became European Champion in the RR3 100m category at the World Para Athletics European Championships in Berlin.



Dr Danielle Farrel

Managing Director, Your Options Understood (Y.O.U.)

Danielle Farrel

My name is Dr. Danielle Farrel and I have CP. I am also the managing director of a community interest company based in North Ayrshire, Your Options Understood (Y.O.U.). Although I am based in North Ayrshire, our services cover currently cover Ayrshire-wide, Glasgow and Edinburgh. Y.O.U provides a range of services including advocacy, consultancy, staff training and support with the self directed support process. Our services are delivered from a first hand perspective of living with a disability and of working in the social care sector. Please get in touch to find our more about how we can support you.





Elizabeth Fleming

Writer and Advocate

Elizabeth Fleming

Elizabeth is a keen writer and spokesperson for adults living with Cerebral Palsy. She lives independently with support of her family and carers in Tranent in East Lothian. Elizabeth has lived with mental health issues for many years and wants to help to demystify and bring to the fore the very real ways that mental health problems can affect young people and adults living with CP. She has written and published two books about her life entitled “With a little help from my friends” and “With a little more help from my friends”. Elizabeth enjoys singing and is a huge tennis fan!




Stephanie Fraser

CEO, Bobath Scotland

Stephanie Fraser

Stephanie Fraser has been Chief Executive of Bobath Scotland Cerebral Palsy Centre since 2012. She is also Deputy Chair of the Scottish Government’s National Neurological Advisory Group and is part of the team that is leading on writing Scotland’s first National Action Plan for Neurological Conditions. She is a member of the Executive Committee of the Neurological Alliance of Scotland and a Board Member of the Office of the Scottish Charity Regulator (OSCR).




Kim Hartley Kean

Head of Scotland Office, Royal College of Speech & Language Therapists

Kim Hartley Kean

Kim Hartley Kean BSc (Hons) MBA Cert. RCSLT is Head of Scotland Office of the Royal College of Speech & Language Therapists, Chair of the AAC Collaborative, and a member of the AAC National Advisory Group. Kim has been the Scotland officer for the RCSLT since 1999 and became Head of Scotland Office in 2014. She promotes the interests of SLTs and their clients to Scotland’s government and parliament.

Kim leads on all RCSLT campaigns in Scotland in partnership with user organisations and other key stakeholders. Current campaign work is focused on the intergenerational cycle of communication disadvantage, AAC, inclusive communication and AHPs in health and social care.

Kim graduated as an SLT in 1988 and before her current post worked as an SLT for adults with learning disability, a health project manager in Edinburgh and a Scottish parliamentary researcher.



Dawn Houston

Paediatric Physiotherapist, Royal Hospital for Children, Glasgow

Dawn Houston

I joined the Paediatric Physiotherapy team at Yorkhill Children’s Hospital in 2001 and have came full circle to re-join the motor disorders service as part of the multi-professional SDR Team at the Royal Hospital for Children Glasgow.

I graduated from Glasgow Caledonian University in 1999, working within the NHS and private sectors in the community, Child Development Teams, and Children’s Hospitals across Lanarkshire, Grampian and Glasgow.

I am grateful to have gained extensive experience of working with children and young people with a wide variety of neurological and musculoskeletal conditions, involvement within specialist combined, botox and orthotic clinics, and contributed to the impending SIGN guideline on the Management of Chronic Pain in Children.


Councillor Mhairi Hunter

City Convener for Health and Social Care Integration

Val Kennedy

Mhairi Hunter has been councillor for Southside Central since 2012. Born and brought up in London she has lived on the southside of Glasgow for most of her adult life. She has worked in politics for twenty years and before that did a variety of jobs ranging from clerical work to working on a market stall.

In 2017 Mhairi was appointed City Convener for Health and Social Care in the SNP City Government. She is also Chair of Glasgow City Integration Joint Board. Mhairi is a carer for her elderly father.






Val Kennedy

Paediatric Physiotherapist, Royal Hospital for Sick Children, Edinburgh

Val Kennedy

Val is a Bobath trained paediatric physiotherapist working within the department of neurosciences at Royal Hospital for Sick Children, Edinburgh. She has a special interest in children and young people with movement disorders, spina bifida and those requiring neuro-rehabilitation following surgery or injury.  

Val has been part of a multiprofessional group who, since 2011, have been working towards setting up a Scottish Service for Selective Dorsal Rhizotomy as an option for tone management.






Pauline McFadden

Advocate and Parent Carer

Pauline McFadden

I am mum to Caitlin, an advocate for not only my daughter but other families who may need emotional or practical support.

My interests are in human rights and the field of mental health, especially the mental health of people who live with a disability and their carers. I recently won an award for an inclusive gig I organised with Nordoff Robbins Scotland and O2 ABC in Glasgow.

I have graduated from the Partners in Policymaking course and have used skills I learned on the course to not only change the status quo for Caitlin but also others.




Ross Milvenan

Associate, Digby Brown Solicitors

Ross Milvenan

Ross joined the Digby Brown's Glasgow office in 2010 and is a specialist employment law solicitor and head of the employment department who operate from offices throughout Scotland.

Ross provides advice and representation to clients on all areas of employment law where issues arise. He is regularly instructed to act for senior executives in relation to negotiated exits, settlement agreements, redundancy and restructuring. He represents clients through the Employment Tribunal and Employment Appeal Tribunal proceedings.This includes claims challenging unfair dismissal, constructive unfair dismissal and discrimination due to disability, sex, pregnancy, age and race.



Michelle Morrison

Director, PAMIS South Lanarkshire

Michelle Morrison

I have worked within learning disability services for over 25 years finding my passion in supporting people with profound and multiple learning disabilities (PMLD). I have been with PAMIS for 16 years working alongside families in our Family Support Service. During this time, I’ve supported carers in raising the issues surrounding management of body shape through postural care. This has included creating information and resources with partner agencies, supporting carers in developing their knowledge, skills and confidence through training and sharing this with others. PAMIS co-chair the Scottish Postural Care Strategy group with the Scottish Government and support carers to attend ensuring they are equal partners in this exciting development.


Claire O'Neill

Advanced Nurse Practitioner and Founder Parent of Bobath Scotland

Claire O'Neill

I am a heart failure advanced nurse practitioner in Greater Glasgow and Clyde. I am a founder parent of Bobath Scotland since 1994 along with my husband Martin and another couple of parents.

I am mum to Dominic, 25 years and Michael, 18 years. Dominic was born at 26 weeks and has severe spastic quadriplegia cerebral palsy. Dominic is totally dependant on others. His desire to live life to the full has driven me to strive to make sure Dominic has had every chance to achieve his full potential and have a great life. Thankfully with good transition Dominic is leading as independent a life as he can. This involves keeping your finger very much on the pulse and being a strong advocate for Dominic and others with disabilities.


Dr Jenny Preston MBE, PhD, BSc (Hons), DipCOT

Consultant Occupational Therapist and Clinical Lead Neurological Rehabilitation

Claire O'Neill

Jenny Preston is an occupational therapist with more than 30 years clinical experience in the field of neurological rehabilitation. Jenny is currently Clinical Lead for Neurological Rehabilitation in NHS Ayrshire & Arran with key responsibilities for the strategic leadership of the service. This includes creating a vision incorporating patients, carers and service providers to develop and evaluate person-centred models of care. Jenny’s practice is firmly rooted within a biopsychosocial model recognising the wider aspects of neurological disability and appreciative of the challenges from an holistic perspective. Jenny is current Chair of the College of Occupational Therapists Specialist Section Neurological Practice and author and editor of “Occupational Therapy and Neurological Conditions” (2016). Jenny is a clinical academic with publications related to aspects of management of neurological disability. Jenny was appointed a Member of the British Empire (MBE) in the 2017 New Year Honours List for services to the occupational therapy profession and neurological rehabilitation.


Jenny Trott

Advocate, YouTuber and Parent Carer

Jenny Trott

As the parent of a young person who lives with a disability I continue to adapt to the parallel world we sometimes find ourselves in. I am learning to be positive about my son’s future; dream big and find ways to develop and make the most of his unique gifts and talents.

In 2017 I graduated from the Partners in Policymaking course, a leadership course for parents and self-advocates. I am sharing the knowledge I gained from that course, my life as a parent carer, and the new things that I am discovering from my guests, via my YouTube channel.



Philip Vervaeke

Physiotherapist, Bobath Scotland

Philip Vervaeke

Amongst other roles such as a father, a partner, a volunteer with a youth movement and a children’s yoga teacher, I am also a physiotherapist. My aim is to really listen and respond to individuals’ needs within the trans-disciplinary Bobath team approach to therapy for people with cerebral palsy and allied neurological conditions, be it a baby, a child, an adolescent, an adult, a sibling or a parent or carer.

I trained in Leuven, Belgium and qualified as a physiotherapist in 1995. I worked for two years in a general hospital in the east end of Glasgow and three years in community paediatrics in Lanarkshire before joining the team at Bobath Scotland in 2002.

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