Connecting with other people who have direct experience of CP, either individually or as a family member, can be really helpful. There are some very active online support groups where you can meet others who “get it”, ask advice, and share practical information.
Online forums
CP Support (Scotland) for Parents of Children with Cerebral Palsy – This is a very active Facebook group with over 500 members. The group welcomes parents of under 18s, and over 18s. A great group for support, sharing advice and information.
Cerebral Palsy Scotland (for adults) – This Facebook group is mainly for adults with cerebral palsy to talk to other adults with cerebral palsy, but if parents wish to join they are welcome.
CP Teens UK – CP Teens provides “help, hope, inspiration & friendship to children and young people with cerebral palsy and similar physical disabilities”. The group has a regular blog, guest blogs and a monitored ‘chat and meet’ online space for young people with CP age 13-25.
Scope Online Community – Scope is the disability equality charity in England and Wales. Their online disability forum has a cerebral palsy group.
Blogs
There are loads of blogs out there where you can hear direct from people with CP and from parents in their own words. Sometimes, it’s nice to be reminded that you’re not alone, and you’ll pick up some hints and tips too.
Firefly Blog – Not specific to cerebral palsy, but a hosting site that gathers together lots of personal blogs, mainly from mums of disabled children.
Scotland-based blogs from mums of kids with cerebral palsy include: The Long Chain, Lyla’s Angels, Quinns, Trains and Cerebral Palsy, Life of the Royals, Adventures of Evelyn Skye and Life with a Little T.
Disability Tech Dad – A blog with great ideas to help you make the most of technology with your child, from a dad whose youngest son has a genetic condition which includes symptoms such as quadriplegic cerebral palsy.
Chloe Tear – Award-winning disability blogger and freelance writer. Chloe Tear is 21 years old and has mild CP, chronic pain and Visual Cortex Disorder.
Simply Emma – Based in Scotland, Emma is a leading travel and disability blogger focusing on accessible travel and life experiences from a wheelchair user’s perspective.
If you have a blog, particularly if you’re Scotland-based, let us know! info@cpscot.org.uk
