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Making the transition from children’s to adult services

Making the transition from children’s to adult services

Transitions panel session

This panel session, filmed at the Cerebral Scotland Conference 2018, provides information and personal experiences on making the transition from children’s to adult services.

The session was moderated by advocate and YouTuber Jenny Trott, who is also the parent of a young person who lives with a disability. Jenny’s YouTube channel is packed with useful videos covering topics from exploring communication aids to advice for how to plan for a caregiver emergency.

Panel contributors on the day were: Gavin Drysdale, a student and athlete about to make the transition into adult services, and Dr Danielle Farrel, managind director of Your Options Understood (YOU), a community interest company providing advocacy, consultancy and training on the self-directed support process. The third panel member was Claire O’Neill, advanced nurse practitioner and founder parent of Bobath Scotland, whose 25-year old son lives with cerebral palsy and made a positive transition into adult services.

 

Bobath Scotland’s Annual Review launched at Cerebral Palsy Scotland Conference

Bobath Scotland’s Annual Review launched at Cerebral Palsy Scotland Conference

Bobath Annual Review

Bobath Scotland’s latest Annual Review was launched at the Cerebral Palsy Scotland Conference and Exhibition on 4 October and showcases the charity’s achievements over 2017/18.

The Review sets out how Bobath Scotland has worked to make the lives of those living with cerebral palsy (CP) better over the course of the last financial year, between 1 April 2017 – 31 March 2018. This was achieved in three ways, by:

  • providing lifelong support for people living with CP, through delivering therapy for children and adults, therapy-based groups for people of different ages, and therapy outreach;
  • connecting and bringing the CP community together, both online and through events; and
  • working for changes in policy that improve the lives of people with CP.

Isaac

The Review also contains interviews with two families who talk about how they have benefitted from coming to Bobath Scotland, and what the charity means to them.

Commenting on the launch of the Annual Review, Stephanie Fraser, CEO of Bobath Scotland said:

“I am very proud of the achievements of Bobath Scotland over 2017/18. This Annual Review celebrates how the charity is working in different ways and at different levels, but unified by the sole purpose of helping people in Scotland who are living with CP.

“The Annual Review is also our opportunity to draw attention to the charitable trusts, foundations, fundraisers and donors who have supported the charity over the past year. Over 80% of our funding has to come from private sources. An increase in the amount of funds raised over 2017/18 compared to the previous 12 months has ensured greater access that ever before to our vital therapy services and we want to sincerely thank everyone who made this possible.  

“This year we identified the need to ensure more clinical specialist knowledge of the management of cerebral palsy is available throughout Scotland. Therefore we have committed to delivering the Bobath training course for Scotland-based therapists in 2019 and £50,000 (50% of the total cost) of our funds from 2017/18 has been earmarked for this purpose.

“We continue to be motivated by the many people who come to Bobath Scotland and who feel so passionately about the services we provide. We are determined to keep on improving those services, and to always ensure we are a lean and efficient organisation.”

Read Bobath Scotland Annual Review 2017/18.

Making the transition from children’s to adult services

Making the transition from children’s to adult services

Transitions panel session

This panel session, filmed at the Cerebral Scotland Conference 2018, provides information and personal experiences on making the transition from children’s to adult services.

The session was moderated by advocate and YouTuber Jenny Trott, who is also the parent of a young person who lives with a disability. Jenny’s YouTube channel is packed with useful videos covering topics from exploring communication aids to advice for how to plan for a caregiver emergency.

Panel contributors on the day were: Gavin Drysdale, a student and athlete about to make the transition into adult services, and Dr Danielle Farrel, managind director of Your Options Understood (YOU), a community interest company providing advocacy, consultancy and training on the self-directed support process. The third panel member was Claire O’Neill, advanced nurse practitioner and founder parent of Bobath Scotland, whose 25-year old son lives with cerebral palsy and made a positive transition into adult services.

 

Cerebral Palsy Scotland Conference biggest and best yet!

Cerebral Palsy Scotland Conference biggest and best yet!

Held on 4 October at Hampden Park, the fifth annual Cerebral Palsy Scotland Conference and Exhibition was a great success, bringing together around 200 delegates and 40 exhibitors.

Conference audience

Organised by Bobath Scotland and supported by Digby Brown Solicitors, the conference is Scotland’s only event focussing on cerebral palsy (CP) and aims to bring together all people with experience of CP – either directly, through family or professionally.

Delegates heard from a diverse range of speakers, including Richard Davenport, Chair of the National Advisory Committee for Neurological Conditions and Dr Jenny Preston MBE, Clinical Lead for Neurological Rehabilitation in NHS Ayrshire & Arran.

Workshops on the day covered topics including mental health and CP, making the transition from children’s to adult services, self-directed support, postural care, Bobath therapy, Selective Dorsal Rhizotomy (SDR) and Augmentative and Alternative Communication (AAC).   

The exhibition area was very popular with delegates, showcasing 40 organisations providing specialist equipment and a range of services that support people with CP.  

Commenting on the conference, Stephanie Fraser, Bobath Scotland CEO said:

“Bobath Scotland is determined to make the lives of those living with cerebral palsy better. Delivering the annual Cerebral Palsy Scotland Conference is just one of the ways we do this, alongside providing a range of services including specialist therapy, running groups and events, and working for changes in policy. 

Delegates

“This was the fifth Cerebral Palsy Scotland Conference that Digby Brown and Bobath Scotland have organised together and we were delighted to attract more delegates and exhibitors to the event this year than ever before. The conference is unique in Scotland in bringing together the whole CP community and it provides a valuable opportunity to network, discuss key issues and find out about relevant services and organisations.  

“There was a really positive atmosphere at the event with many valuable conversations and discussions taking place throughout the day. We are very grateful to Digby Brown Solicitors for continuing to support this fantastic conference.” 

Highlights from the day were captured in this short film, put together by conference contributor and vlogger Jenny Trott.

To keep in touch with news of upcoming Bobath Scotland events and our other services, please sign up for email updates.

What’s a Neater Eater?

What’s a Neater Eater? 

In the first of a series of equipment reviews, blogger Bernie tells us about the Neater Eater

Bernie Hunter

The Neater Eater is an aid to assist me when I am eating, it is a piece of equipment that attaches onto a standard table, with it’s own plate and spoon which attaches onto a bar and this moves up, down, back and forward- this is how you control the spoon, it has also got grips on the bar and this makes it easy to hold.

 There are two versions of the Neater Eater… a manual or electric version. The electric one is for people who are not able to use their arm to physically hold the Neater Eater’s bar to control it down to pick up the food then up to their mouth. This one can be programed for the times at the rate that the person eats at, it is usually operated by a button but it can adapted to be operated by switches. The manual one is not electric and you need to use your hand to use it to operate the Neater Eater which I can to do.

 I have Cerebral Palsy    which effects my movement, I find it very challenging to eat certain types of food by myself especially liquid foods like- cereal, soups, beans, peas, noodles and yogurts. All foods that require you to eat with a spoon, I can’t physically get these onto a spoon and into my mouth without dropping the food. This is because of my involuntary movement, so I have had help from family members, who I feel comfortable with, assisting me at meal times for most of my life.

In 2017, is when one of my family members found out about the Neater Eater and we looked into it. I got in touch with my O.T department and an O.T came out to my house and assessed me. The next step was to request a home visit from the company to assess me and to demonstrate the Neater Eater…this was to see if I would benefit from having one of my own and also to see what type of Neater Eater that would be suitable for my needs…the electric or manual one. The process of the order took a few weeks as funding has got to be sorted out but it was definitely worth the wait.

 Once the piece of equipment is set up by the company, to best suit people’s individual needs. It is ready to use. As I have said, I have the manual version of the Neater Eater. To operate it all I have to do is put my hand on the bar which has grips on it which secures my hand and the spoon is attached onto this part, I lower the bar down until it reaches the plate, I pull the bar forward in order to get the food onto the spoon and then you have the option of keeping your hand on the bar or taking you hand off as it has springs built into the movement of it, meaning that the bar comes back up automatically to the level that my mouth is at and then all I have to do is pull the bar forward, towards me and take the food off of the spoon. You just repeat these steps up until you are about to finish, the plate spins round and I use my other hand to spin  it round while holding the bar down in order to get the food that is round the edges of the plate. There are also other types of accessories such as cutlery – spoon or fork that you can get for the Neater Eater. I personally just use the one spoon and plate for all foods as I can manage but other people might prefer to change the spoon or plate, depending on the type of food that they are having.

Overall, the Neater Eater has made a big difference to me, it has given me independence at meal times, I don’t need any assistance with liquid foods anymore…I have more of a choice of foods now whereas before, I always had to pick the easy option like solid foods that don’t require you to eat with a spoon. It’s amazing how my movements does not affect how the Neater Eater operates.. No matter how much I move, the bar and spoon stays in the set position.

I have to put so much more effort into doing tasks as my muscle tone tenses up when I’m concentrating on something, this makes me really tired as I am putting a lot of energy into it and before I got the Neater Eater I often felt tired after eating foods that I needed a spoon for, even know I had assistance at meal times- I still tried to do as much as I could myself. Now I have got the Neater Eater, I don’t have to put just as much energy into it- making me enjoy my meals more.

Check out my demonstration of the Neater Eater here: https://youtu.be/S6HYyDMdF6I

To find out more about the Neater Eater go to the following website: http://www.neater.co.uk/neater-eater/

 

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