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Teen Academy (An outside perspective from a teen who has CP)

Kirsty tells us about her experience at last week’s Teen Academy.

I can remember when Teen Academy was in its early days, before it was even called Teen Academy. Three years ago I attended Bobath Scotland’s “Girl’s Group” with two other girls who also had mild Cerebral Palsy. Being a shy fourteen year old who would always ask for help (even when I didn’t necessarily need it) the group built up my confidence and helped to make me the independent person that I am today. I remember particularly enjoying the week as everyday there was either a visitor, i.e. Gary Spence from Capital FM, or a group activity, like walking to the café for a drink or playing a game. Even though these activities were incredibly fun, they also built up my communication skills and independence. The therapists showed me that, as great as it may seem to be able to rely on other people for everything, it is not necessary to do so as an adult.

Three years on, it feels strange to be on the other side. My week observing and helping at Teen Academy has, I have to admit, been one of the best weeks of my life. I have loved chatting to the teens, of all abilities, about their lives, and it has shown me that, no matter our level of CP, our ability to talk or walk or how many crutches we own, everyone is battling to be the best, strongest, most clever human being that we can be. Being around people with the same condition as me has made me feel like I’m part of one big family, and that my CP is nothing to be ashamed of!

One of the things I absolutely adore about Bobath Scotland is the atmosphere. The centre feels incredibly homely and above all, exudes from it such an immense amount of positive energy. Whenever I used to come here for therapy, I would enjoy every moment of it – as, with the creativeness of the therapists, it never felt as if I was solely doing physio – it was fun therapy. And that’s exactly what this year’s Teen Academy set out to do.

As I entered the kitchen on Monday morning for the first time in three years, I was greeted with the sight of the younger teens working hard, paired up with their own personal therapist for the week. I was directed to the back room, where I met the charming Jennifer, who had begun working on her goal of being able to take her jumper off by herself. The teens have a set of goals which they aim to achieve by the end of the week, and use a points system to score themselves on how well they think they perform these tasks. Jennifer scored herself a 3/10 for removing her jumper, but could manage this by the end of the first hour. During the second hour, the group worked together to make ice cream and soup. Everyone had a task to do, from chopping leaks to switching on mixers, and it was great to see the teens, who had only just met that morning, getting along and communicating well with each other.

 After lunch, I made my way down to the kitchen once more, only this time to be confronted with the older teens sitting in a circle. I must admit that this was daunting, as these were people of my own age, it was also pretty overwhelming to be in the same room as so many other teens that understand the struggles I go through daily. I introduced myself, timidly, and then began the group’s game of Boccia, which I was lucky enough to take part in. for those who don’t know, Boccia is a Paralympic sport, played by – mainly – wheelchair users. It’s a bit like bowls , in that, the objective is to get all your team’s balls as close to the white ball (or “jack”) as possible. There were two teams; the Glasgow Gladiators (the team I was on) and the Allstarz.  After six rounds (or “legs” the Allstarz won 5-3. Afterwards, the group split to work on individual goals. I got chatting to Abigail, who wanted to be able to carry things in her right hand, including her TV remote, whilst walking. She told me that she was due in for surgery the next Monday, and that she saw Teen Academy as a good opportunity to strengthen her hand before surgery and learn some new exercises to try out post-op.

 

Now that I knew what was in store, I was eager to begin my second day at the Teen Academy. Even though I wasn’t receiving any of the physio, I enjoyed observing the way in which the therapists worked with the teens – never giving up on their goals, even when it may have seemed impossible. I was more confident on the Tuesday, and spent the first hour strolling in and out of rooms, talking to the teens and watching them working on their goals. Kyle wanted to make a cup of tea and toast, and of course I was on hand to make sure the toast tasted just right! During the second hour, the young teens were introduced to the static bikes, which was the beginning of their challenge for the week. They had to clock up as many miles as possible by the end of the week.

The afternoon group began with their individual goals; Elise and Eilidh worked on their cooking skills, Abigail continued to work on strengthening her arm and back, and Neil buttered some cinnamon bagels, which, fortunately I was there to inspect (They tasted very nice!). Afterwards, the group split; half using the exercise bikes, half playing tennis on the Wii. Everyone in the afternoon group was incredibly competitive, a contrast from the morning’s supportive atmosphere, this being proven by Neil cycling so fast on the static bike that one of the pedals came off!

 

 

By the Wednesday I had gotten to know the teens rather well. It was great to see their progress over the course of the week, and I had become more confident with helping the therapists, and chatting to the younger teenagers. Everyone began by working individually; from fastening buttons to eating Nutella, the kitchen was buzzing with productiveness. Another thing that I love about Teen Academy is that no goal is too little, or too big, whatever the abilities of the teens, the therapists work with them to ensure they get as much as they possibly can out of the week. Afterwards, SJ and Jennifer decided to have another go on the static bikes, whilst Kieran, Eilidh and Kyle had fun playing bowling on the Wii.

The afternoon brought with it the opportunity for me to speak to the group. Kirsty, who is a GP and also has Cerebral Palsy, came along to tell the teens about her journey into employment. She spoke about how she never ruled anything out just because of her disability; her guidance teacher at high school was against her pursuing a career in medicine, however she thought to herself “I’ll give it ago, and if it doesn’t work out, at least I’ll know I’ve tried it”. It was great to hear these words from someone similar to me who actually got into the job she wanted, and it has inspired me, and the other teens to fight for what we want in life, and to never give up. I then told the teens about why I chose to volunteer at Bobath and the opportunities it may bring me in the future. I wanted to show the older teens that, even though employment may seem like uncharted waters, there are steps you can take in order to make life after education less daunting.

 

Thursday morning was a bit different. As I strolled into the kitchen at my usual time, I was met by a wave of paparazzi, producers and parents. STV had come to visit. I was quickly propped onto a seat and told to smile for the camera as a huge cheque was handed over to us! This was the grant awarded to Bobath Scotland by the Scottish Children’s Charity so that Teen Academy could run smoothly this year and to its full potential. The chaos continued even after the cameras had gone as Gary Spence from Capital FM, accompanied by his roadies, invaded the kitchen with a rather large mixing table and two booming speakers. The music began, and each of the younger teens had their turn of switching between tracks and scratching something that looked, and sounded, a lot like a vinyl record. Everyone was up and dancing and the positive energy was through the roof!

In the afternoon, the older teens were visited by speakers from Scottish Disability Sport, who told the group about the variety of opportunities their group had to offer them; from volunteering to competing in tournaments/matches, the pair spoke about the variety of games and sports they held across Scotland and how the teens could get involved. After that, the group then played yet another game of Boccia (with a few more rules this time, just to make it even trickier) – the scores were now almost even, with the Gladiators just scraping a win with one extra point.

The final day of Teen Academy was by far the most heart-warming. After achieving their individual goals, the young teens then played a game of “Disco Bingo” and had a go at Boccia. The girls (Eilidh and Jennifer) won 6-2, proving that there is such a thing as Girl Power! Afterwards the parents came into the kitchen to watch the teens be presented with their certificates. This was an awards ceremony far superior to the Oscars or Brits, as being able to witness the proud expressions on the teen’s faces is something I won’t forget in a hurry! The parents all seemed extremely thrilled with their children’s progress and very interested on how to maintain this.

The afternoon was very similar. After she achieved her goal of being able to tie the belt on her very fashionable shirt, I spoke to Eilidh about how she was getting on at university. Eilidh is going into her second year of law at uni, and shares my love of literature. We got chatting about classic authors like Charlotte Bronte, and soon the rest of the group joined us to chat before playing one last game of Boccia, this time it was Therapists VS Teens. Unfortunately, after many, many “deciders” the therapists won 13-10. After our defeat, the teen’s parents came in to witness yet another awards ceremony, and this time my name was called. I was thanked for helping out over the week, but the phrase “my pleasure” has never reigned so true.

The week I spent at Bobath’s Teen Academy has been an incredible opportunity. I have loved seeing the teens progress and most importantly, enjoying themselves. It is such a wonderful experience to be surrounded by people my age that are in a similar situation to me, hence I feel this is the reason Teen Academy works so well. In my opinion, it makes the teens feel less alone, and more understood by their peers – that is the case for me, anyway, as all of my friends are able bodied, and although they are understanding of my condition, it was refreshing to be around teens who didn’t fret over me or be especially cautious around me, and treated me, dare I say, as an equal.

 

“I thought the week overall was a great success, like every other time I’ve been to Bobath I thought the approaches there achieved notable progress.” – Eilidh, 18.

Join Jill: Disabled Access – Jill’s been out and about in Glasgow

Join Jill: Disabled Access – Jill’s been out and about in Glasgow

Jill shares her experiences of disabled access, good and bad, and asks for more Changing Places facilities.

As a disabled person who uses a wheelchair all of the time, disabled  access is really important to me and for many other people. Without disabled access in places disabled people  couldn’t go  anywhere that we want.

Good disabled access is when there is ramps, a lot of space to move around, have big disabled toilet with all equipment in it such as a hoist and lifts.

Over the years I had very bad experiences of bad disabled access like going  in to a shop and what I want to see is upstairs or downstairs and there are no lifts, or going into a disabled toilet and it is too small and there are no hoists.

Me and my friend loved going to the restaurant called TGI but the TGI in Glasgow city centre isn’t accessible. First there are steps to get in to the restaurant but I must say that the restaurant staff are quite good getting a ramp down to get in  to the restaurant. However, once you get in the restaurant it is very tight to move a wheelchair around.  The other problem is the toilet. It is  right next to the  kitchen (which I don’t think that is right) and then once you  get in the  toilet, the toilet bowl is on a step up so you need to step up to sit on the toilet and that isn’t really good for a disabled toilet.

Like I said before, one of main things of good access which it is really important to  me is disabled toilets.  Everywhere has or (should have) a standard disabled toilet.  A standard disabled toilet is a big room to move around in and hand bars but these disabled toilets aren’t quite so good for everyone like me who requires a hoist.

 As someone who requires a hoist to get to the toilet I am very aware of the  lack of places in Glasgow where there is a disabled toilet with a  hoist and therefore I can’t  go  where I  want to in  case that I need the toilet. I am pleased to say that it is getting better thanks to Changing Places.

Changing Places is an organization that campaigns for public places to get a Changing Places toilet.   A Changing Places toilet is  for people with profound and multiple learning disabilities, as well people with other physical disabilities such as spinal injuries, muscular dystrophy and multiple sclerosis often need extra equipment and space to allow them to use the toilets safely and comfortably. These needs are met by Changing Places toilets.

A changing   places toilet has all of the equipment that a disabled person needs such as a hoist,   adult changing bed, shower and a lot space to move around.

Glasgow  has  a quite few changing  places toilets now, such as Braehead  shopping  centre, St Enoch centre, the Hydro and a lot more  but it isn’t enough because when you    think about it. There is about ten shopping centres in Glasgow but just two out of the ten does have a changing places toilet. The numbers are really terrible!

Back to all disabled access, it is really  important to all  disabled people because really without disabled access disabled people can’t go anywhere that they want.

One of the things which makes myself angry about access is seeing a place just built or that has just been up dated and there isn’t any disabled access, such as no ramp, too tight to move around inside or not the right disabled toilet (Changing Places toilet).  I remember reading a story on the internet about a little boy who is in a wheelchair and he went in to toy shop which it was just opened.  The toys which the little boy wanted to see were upstairs but there wasn’t any lifts, and for a new shop it is really terrible.

I hope in the future that everywhere and anywhere will have the right disabled access,

Jill

P.S. If you’d like to find a great toilet please visit http://www.changing-places.org/find_a_toilet.aspx 

Meet Kirsty; Employment

Meet Kirsty; Employment

Here, Kirsty tells us about her thoughts on entering the world of work.

Employment is one of the most important factors of a person’s life. Without it, we have no means of earning our own money. Of course, there are benefits for those who can’t work, but for some people, the feeling of gaining money without actually having done something to earn it feels somewhat selfish.

    I am now in my sixth year of high school, and we have begun thinking about what we will do with our lives once we leave. I certainly don’t want to be stuck at home watching daytime TV 24/7 (as nice as that sounds!), I would much rather be out doing a job I love, and gaining from it the money I need in order to live comfortably. However, I do realise that my journey into “the real world” will be far more treacherous than that of my peers.

         Firstly, there are so many more aspects to take into consideration; whereas most people my age are thinking solely about their qualifications, and whether they have done enough to get into college/university, I will have to focus on how accessible these places are and whether they can accommodate me, not just whether the course is suited to what I want to do once I graduate.

          I have to admit that I haven’t thought a lot about what I’m going to do once I leave education completely. I’m taking it one step at a time and my next goal from here is university. However, the world of employment to me still seems like uncharted waters.  I know what I want to do and I’m good at what I do, but, being disabled, these elements are the last thing that employers will consider. I almost feel like everyone else in my year has it easy. They have fewer worries when leaving school, and, even though some may be nervous about moving on from their comfort zone, I am apprehensive about whether I will be given the proper support I need, and whether my life will be a lot more difficult once I leave my comfort zone.

    I think what I am most worried about when entering the world of work is the fact that some employers may dismiss me because of my disability. I’ve been writing stories and poems since I was nine years old, so I’ve had years of practice and experience, however, I always fear that employers will patronise me – that’s my biggest fear. I hate being looked down upon, and I am scared that when I do get a job, I won’t be seen to be as capable as my co-workers.

       Since I started volunteering at Bobath I have had a glimpse of what the working environment is like. I feel very comfortable here as I have been given an opportunity to experience what it is like working in journalism. Even though I am volunteering, having my work published makes me feel like I have actually achieved something worth shouting about, and writing for a charity which has helped me so much throughout my life makes me realise that I’m doing this for a reason.

    Right now, for me, there are a lot more questions than answers, and I realise that I have a long way to go, and a lot of changes to get used to, before I can stop stressing over qualifications, interviews and access issues. I love writing, and I love sharing my opinions. If I were to get a job in journalism, I think I’d be the happiest person alive. However, I realise that my road to employment will be a rocky one, and that there will be many hurdles to overcome, but, if I have confidence in myself then I can achieve anything I put my mind to.

 

10 Things You Should Know About My Life With Cerebral Palsy

10 things you need to know about my cerebral palsy

Kirsty gives us a list of all the things you should know about her life with cerebral palsy.

1. It doesn’t stop me from being myself

Bronte Museum

I like rock music and I want everyone to know it! I dress unconventionally, because I want to stand out from the crowd. People naturally assume because I sometimes use a wheelchair that I’d want to blend into the background, but far from it! I wear bright purple lipstick and AC/DC shirts because I want to be noticed. If they’re gonna stare then give ‘em a reason to!

2. My CP doesn’t give you a reason to patronise me

10CC photos grouped

I’m seventeen so don’t treat me like I’m five! Just because you see me in a wheelchair doesn’t mean you can call me a “wee girl” – I may be baby-faced but this wheelchair ain’t no pushchair! (These pictures are from when I met the band 10CC, who were very nice. This is Mick Wilson trying to steal my hat!)

3. I don’t need your help

I’m pretty independent, so when people are pushing and pulling me every which way, it’s more annoying than helpful. If I need your help – I’ll ask for it. Just because you think I’m struggling doesn’t mean that I actually am. This picture is from when I went on my first proper holiday without my parents – Switzerland with my Girl Guides!

4. I’m not just a label!

I can remember going to an album signing by a band that I really liked (The View) and being referred to as a “wheelchair”, by the security guard who kindly instructed everyone to “let the wheelchair through”. I honestly felt like saying “Excuse me, I have a name”!  I mean you wouldn’t refer to someone as just “green shirt” or “blue jeans”. You wouldn’t call someone by just the clothes they are wearing, so why refer to me as an inanimate object?

5. I don’t want surgery to “fix me”

I have been offered the option of surgery a few times, but I don’t want it! There are no guarantees that it will definitely work, and I would be in cast for months. When I told people that I was offered the option, but turned it down, they responded as if I had just turned down a million pounds! There is no real cure for cerebral palsy, only ways to make the effects of it less profound; like physio. So, I would rather not go through extensive surgery in order to “fix” something, which really, cannot be fixed. This picture is from one of my botox appointments a couple of years ago – where I used to get botox injected into my legs in order to make them looser.

6. I’m not self conscious about my CP

My cerebral palsy has affected me my whole life, so I’ve gotten used to it. It isn’t on my mind every second of every day – in fact, it’s rarely ever on my mind. I’ve gotten used to dealing with the obstacles I face every day, and even though I walk very differently to other people (dragging my foot, etc..) it’s not something that plays on my mind. As I have never experienced what it is like to live without my CP, I have no reason to be self-conscious, as this is who I am. This is another pic from Switzerland!

 

7. Growing up with a disability makes you appreciate more

I don’t take anything for granted, I walk as often as I can and never use my disability as an excuse not to do anything – unless I physically can’t do something. I hate seeing people taking their ability for granted. In April I walked around the full Brontë museum in Yorkshire, and walked up two flights of really steep steps because I am a huge fan of the Brontë sisters and didn’t want to let my CP stop me from experiencing something that I loved.

8. Not everyone with cerebral palsy is the sameSunny (cropped)

Cerebral Palsy affects the brain; hence no two cases of it are exactly the same. The symptoms can range from speech problems to muscle stiffness, learning difficulties to weak limbs, and there are many different “types” of CP, so the severity of it can range from mild to severe. I’m lucky, as my Cerebral Palsy is very mild, and I now use crutches the majority of the time, however, I feel like there is a stereotype that all people who have CP have a learning difficultly, or can’t talk, or use a wheelchair 24/7. Whereas this is the case for a lot of people with Cerebral Palsy, it’s not with me. I feel like people tend to judge very quickly when they see me in my wheelchair, and assume that I am not as smart as I am, or feel like they have to talk down to me, which is incredibly annoying. Even my best friend didn’t know that there were other severities of my disability, and that the effects of my CP were mild, therefore I feel like there needs to be more information out there about my condition, and for people to be taught that not everyone with it is affected in exactly the same way.

Here’s my Dad and I enjoying the sun!

9. There is no cure

Me and Mum

As I said before, the only options of reducing the effects of CP are either physio or surgery; there is no real cure. However, I don’t let that fact get me down. Sure, if I had the option to change a few things about myself, I would, wouldn’t we all? But, would my CP be one of them? Probably not. My Cerebral Palsy is part of who I am, without it I wouldn’t be the person I am today. I try to be as positive as I possibly can about everything, and try to live as “normal” a life as I can, as, after all, I am normal. This is a pic of my Mum and me when I was about 2.

10. Friends and family get you through it!

Jakk Rubyanne and I

I have been so blessed to have an amazing family and awesome friends. It is thanks to these people that I can stay positive about myself and be happy! They never patronise me or treat me differently because of my condition, and it’s because of this that my mind isn’t constantly plagued with the fact I have Cerebral Palsy. In my eyes, I’m just a seventeen year old Rock Chick ready to take on the world no matter what life throws at me!

Meet Kirsty: Music

Meet Kirsty: Music

Kirsty tells us all about her love of music and how she’s overcome obstacles to pursue her passion!

I have always loved music. This is probably because my Dad was in a band in his early twenties, and still plays his guitar every day. I grew up in a musical household, which inspired me to become a musician. When I was about ten, my Dad bought me a guitar. However, I found it very difficult to play and gave up almost as soon as I started. In Primary six, a woodwind teacher came into our school asking if anyone wanted to be a musician. I was one of the first people to show up to auditions; in which Doctor Harris would put pupils through a gruelling test, which assessed our ability to recognise rhythm, pitch, and above all, how well we could breathe! We were allowed to try out the mouthpieces of the flute, clarinet and saxophone, and then we were told what instrument was best suited to us. I desperately wanted to play the sax, as my Grandfather played for most of his life, and was part of a successful jazz band. Doctor Harris was very perceptive; she took my Cerebral Palsy into consideration and worked out which instrument would be easiest, and best, for me to play. Thinking back, she could’ve easily dismissed me because of my disability – as the music industry is a scrupulous place, full of perfectionists. However, her kindness and understanding on that day meant that I had the opportunity to be seen as something other than just someone with a disability. 

We realised quickly that holding the saxophone would be difficult for me, as it is very heavy (about the same weight as a bowling ball). The saxophone is meant to be held to the side, having only the sling (a strap around the neck which is hooked onto the sax) for support. We solved this issue by placing two pillows between my legs in order to hold the weight of my saxophone, after that, everything went swimmingly.

High School was the first opportunity I had to be part of an actual music class. In first and second year, we were given the chance to try out guitar, glockenspiel, keyboard and drums. I had a go at all of these, keenly, as I saw no reason why I couldn’t. The teachers, again, were so considerate, and were always eager to help me gain these experiences – so I never felt like I was missing out on anything. It was at this time, also, that my tech teacher offered to make me a wooden stand for my saxophone, instead of the unaesthetically pleasing pillows. This was a great help and made it easier to play the instrument that I loved.

Going into third year, we were to pick two instruments to focus on leading up to our National 5 exams in fourth year. I knew I wanted to continue sax, and I chose to learn keyboard (which was a popular instrument amongst my classmates). Not being one to follow the crowd, I asked my mum if I could start piano lessons. She agreed and told me that our neighbour, Lauren, was a piano teacher, so I began my lessons with her at the end of third year. 

Lauren was also an incredibly kind person. She knew that my hands were quite tight due to my CP and that my fingers tended to lock sometimes, so she searched for pieces that not only would I love playing, but that were the easiest for me to learn to play (she always likes to challenge me and doesn’t treat me any differently to her other pupils!). Even though my actual music teacher felt there was no way I would pass my exam in the time I had (eight months) I passed with an A! My teacher was shocked as she told me that it normally takes at least two years for someone to just pass Grade 4 piano, never mind with an A!

Last August I joined the South Lanarkshire Orchestral Society intermediate band. In order to get in, you have to audition, but it turned out that the conductor of the band was actually the woman who had examined me for my Grade 4 – so no audition needed! Since I have been there I have performed two concerts with the band, both at the Hamilton Townhouse. My fellow bandmates are so helpful and always make sure that I have everything I need before we play. Playing in a band makes me forget that I am any different to anyone else as I am focusing on my ability as a musician, and performer, and nothing else.

I am so grateful for all of the teachers and fellow musicians who believed in me in order to get me to where I am now. I love being able to play my saxophone, and, through being a musician, I have learned what it is like to be treated equally to abled people, not patronised or looked down upon. I have worked and been taught by people who see me for my ability rather than my disability and that are not afraid to tell it like it is! I am proud to say that I am both disabled and a musician, and that those two things can coincide if you put your mind to it. It really is true that you can be anything you want to be!

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