With the general election to be held on 4 July, Cerebral Palsy Scotland is calling on candidates to pledge to improve services for people with cerebral palsy, as well as the data that underpins good service delivery.
There is no clear picture of who has cerebral palsy and where they live across Scotland and the UK, meaning that services cannot be well planned.
The lack of data on people with cerebral palsy directly contributes to the ‘cliff edge’ of care faced by children with cerebral palsy as they transition into adult services, and the lack of specialist healthcare services for adults with cerebral palsy.
Based on our participation work with the cerebral palsy community, our election manifesto contains four detailed asks of politicians that would improve services for the cerebral palsy community.
These include continuing to fund and expand the Cerebral Palsy Integrated Pathway (CPIP) database to cover all children in the UK and a call that the existing NICE guidelines for adults with cerebral palsy and those under 25 must be effectively implemented by healthcare providers.
Download our election manifesto
We will continue to raise these issues with candidates in the run up to the election, and beyond.
What you can do
We’re asking our supporters across the cerebral palsy community to bring Cerebral Palsy Scotland’s election manifesto to the attention of their local candidates and ask them to make people with cerebral palsy count by pledging their support to improve services and data.