Everyone has the right to know what information is stored about them and to check that any data is being processed lawfully and securely. If you would like a copy etc. If you would like see a copy of your record, provide a change of address or up to date information, or to unsubscribe from our e-newsletters or other mailings, please contact firstname.lastname@example.org or telephone 0141 352 5000.
When you, or you and your child, attend for your first therapy session you will be asked to provide information about you and/or your child. This is information is used to provide the service to you e.g. writing to you with a final therapy report and DVD, knowing your medical history to tailor your treatment.
You will be asked to sign a consent form describing the information we hold about you and the ways in which it might be used. You can choose what is right for you.
We store your personal information up until you reach the age of 25 or for eight years after the date of the last entry and then we will contact you to ask if you would like us to destroy or continue to use it for research, invite you back to the centre and to tell you about new services and information about Cerebral Palsy Scotland.
Everyone using Cerebral Palsy Scotland’s services will have a personal clinical file. This information is used for clinical and research purposes;
- The information is stored on our secure server and in a paper file, stored in a locked cabinet.
- We will not share your personal details with anyone else without your permission.
We will ask you if you are happy for your information to be used to send reports or to contact your local team, such as your physiotherapist or a school teacher.
If we are informed that a service user has died, we follow British Medical Association guidance and store their personal records for three years.
Storing information in a database for audit and research purposes
What: We are responsible for ensuring we keep up to date records of any input that we have with you including assessments and outcomes of therapy, together with the information provided by you and professionals involved with you.
Key pieces of information are collated for every child or adult we see. This information is stored in a database, enabling staff to quickly access information as a basis for;
- Service reviews. For example; checking the numbers of children who have had a certain type of assessment used and their results.
- Identifying suitable people for any research projects we may undertake.
Are there any benefits or risks of being included in this database?
There are no direct benefits to you and/or your child although any research we undertake will help us better understand the role and benefits of Bobath therapy in the management of cerebral palsy. This helps us to provide training improve Cerebral Palsy Scotland’s services. Choosing not to participate in this database will not affect the treatment of your child.
Who will use this information?
Information about your child will not be shared with anyone without your consent or unless required by law. The database is password protected and can only be accessed by Cerebral Palsy Scotland employees. Occasionally anonymised information may be checked by others such as a research project supervisor or a representative from a research ethics board if you have given your permission for your information to be used for research. Any publications produced from the audits or research undertaken would be anonymised.
If you have specific questions about the database now or later, please contact Stephanie Fraser, CEO.
The taking and use of photos and recordings
During therapy, it is useful to take audio/video/photographic recordings. This can help us to analyse movement for example, as a basis for making treatment decisions and allows us to provide visual information within reports. Please note that you are under no obligation to provide consent for us to take photos/recordings – and your treatment will not be impacted as a result should you wish to decline.
Here are other ways that photographs and recordings are used;
For therapy: Where time permits we try to provide an edited film of the most helpful parts of the block. A copy of the film is kept in your therapy file at Cerebral Palsy Scotland.
For internal training of Cerebral Palsy Scotland staff: There is a regular programme of internal training – during some sessions we use case studies as a means of analysing our work and generating new ideas for therapy.
For external training: As a specialist centre, Cerebral Palsy Scotland is often involved in external training of support and professional staff who work with people who have Cerebral Palsy. This can include staff from heath, social care and education.
For publications and promotional materials: From time to time we are involved in activities such as producing articles about the service provided at Cerebral Palsy Scotland for various publications. Occasionally we produce posters regarding our work and projects we have undertaken. It is helpful for us to know if you are happy for photos of you to be used. We would contact you to let you know in advance if we intended using a picture in this way.
Donations to Cerebral Palsy Scotland: When you make a donation or attend event, we will create a record of the financial transaction, as well as storing your name, address and postcode together with your Gift Aid declaration. If you make a gift online, we will also ask for your email address.
This is the minimum amount of information we need to ensure that we have a suitable audit trail for the donation and for HMRC.
Keeping in touch
When you make a donation to Cerebral Palsy Scotland, we will write to you to say thank you, both post or by email. You can unsubscribe from any future emails by following the link in the thank you email or by contacting us on 0141 352 5000, 10 High Craighall Road, Glasgow G4 9UD or email@example.com.
You can tell us if you’re happy to receive information about fundraising and events by phone, post or email. We don’t use SMS or external agencies.
In addition to this, we promise never to cold call you or share your data and personal details with other organisations.
In order to maximise your giving and claim a further 25% we must have your name, house number and post code. We also need to keep a record of your Gift Aid Declaration, whether it is made in writing, through ticking a box or telling someone who works for Cerebral Palsy Scotland.
Cerebral Palsy Scotland simply would not exist without fundraising and, more importantly, its donors and fundraisers. We try always to adhere to best practice and act transparently. We follow the Code of Fundraising Practice and comply with the key principles embodied in the Code https://www.fundraisingregulator.org.uk/code-of-fundraising-practice/code-of-fundraising-practice/
Further information about our commitment to fundraising good practice is here……
WEBSITE USAGE DATA
With or without cookies, our website keeps track of usage data, such as the source address that the page request is coming from (i.e. your IP address, domain name), date and time of the page request, the referring website (if any) and other parameters in the URL (eg search criteria). We use this data to better understand website usage so we know what areas of our website users prefer. This information is stored in log files and is used for aggregated and statistical reporting but is not attributed to you as an individual.
We recognise industry standards and employ security safeguards to protect information from unauthorised access and misuse. We use the most accurate and current information you provide in order to process your request. Furthermore, whenever you transmit sensitive information such as billing or credit card information to us through our website we provide you access to our secure server that allows encryption across the internet. This is done to help protect you from unauthorised use of the information you are sending to our server.
Please do not post confidential or proprietary information to our website. Any material, information or any other communication you transmit or post to our website (other than your personal information) will be considered non-confidential and non-proprietary unless we are advised to the contrary and we will have no liability for it. We will be free to copy, disclose, distribute, incorporate and otherwise use the communications in all data, images, sound, text and other things embodied therein for any and all commercial or non-commercial purposes. Users of our website are prohibited from posting or transmitting to or from this site any unlawful, threatening, libellous, defamatory, obscene, pornographic or other material that would violate any law.
TERMS & CONDITIONS
Your use of this web site is subject to the following terms and conditions:
All reasonable measures have been taken to ensure the quality, reliability, and accuracy of the information on this website. However, we:
- may delete, add to, or amend information on this website without notice, and are not responsible for the content of other websites linked to, or referenced from, this website.
- The services, information, software or data (collectively, “Information”) made available at this website are provided “AS IS”, without warranties of any kind.
We expressly disclaim any representations and warranties, including without limitation, the implied warranties of merchantability and fitness for a particular purpose. We shall have absolutely no liability in connection with the services including without limitation, any liability for damage to your computer hardware, data, information, materials and business resulting from the Information or the lack of information available on this website. Specifically, we shall have no liability for:
- Any loss or injury caused, in whole or in part, by our actions, omissions, or negligence, or for contingencies beyond our control, in procuring, compiling, or delivering the Information;
- Any errors, omissions, or inaccuracies in the Information regardless of how caused, or delays or interruptions in delivery of the information; or
- Any decision made or action taken or not taken in reliance upon the information furnished hereunder.
- We make no warranty, representation or guarantee as to the content, sequence, accuracy, timeliness or completeness of the information or that the information may be relied upon for any reason. We make no warranty, representation or guarantee that the information will be uninterrupted or error-free or that any defects can be corrected.
Under no circumstances shall we be liable for any losses or damages whatsoever, whether in contract, tort or otherwise, from the use of, or reliance on, the information, or from the use of the internet generally.
For the purposes of this statement, “We” shall include ourselves and our members, and our employees, partners, principals, agents and representatives, and any third-party providers or sources of information or data.
All materials on this web site are the copyright of ourselves or are reproduced with permission from other copyright owners. All rights are reserved. The materials on this web site may be retrieved and downloaded solely for personal use. No materials may otherwise be copied, modified, published, broadcast or otherwise distributed without the prior written permission.
We make no warranties or representations of any kind concerning the accuracy or suitability of the information contained on this web site for any purpose. All such information is provided “as is” and with a specific disclaimer of any warranties of merchantability, fitness for purpose, title and/or non-infringement. We make no warranties or representations of any kind that the services provided by this web site will be uninterrupted, error-free or that the web site or the server that hosts the web site are free from viruses or other forms of harmful computer code. In no event shall ourselves, our employees or agents be liable for any direct, indirect or consequential damages resulting from the use of this web site. This exclusion and limitation only applies to the extent permitted by law and is without prejudice to any express provisions to the contrary in any written licence or subscription agreement from ourselves in respect of the use of any online service provided via this web site.
Links to other websites are provided in good faith and for information only. We disclaim any responsibility for the materials contained in any web site linked to this site.
Portions of this site may allow users to post their own material. Materials posted by users do not necessarily reflect our views. By posting materials on this site, you represent that you have all necessary rights in and to such materials and that such materials will not infringe any personal or proprietary rights of any third parties, nor will such materials be defamatory, unlawful, threatening, obscene or otherwise objectionable.
We reserve the right, at our sole discretion, to review, edit or delete any material posted by users deemed defamatory, unlawful, threatening, obscene or otherwise objectionable. Notwithstanding the foregoing, we expressly disclaim any responsibility or liability for any material communicated by third parties through this web site.
We may edit this policy from time to time. If we make any substantial changes we will notify you by posting a prominent announcement on our web pages.
You have the right to change your mind about the permissions you have given at any time. You may also ask us at any time to update your details, correct or remove information you think is inaccurate by:
Writing : Cerebral Palsy Scotland, 10 High Craighall Road, Glasgow, G4 9UD
Tel: 0141 352 5000
You also have the right to know what personal information Cerebral Palsy Scotland holds about you.
To request a copy of your personal information we hold, please contact us by:
Writing : Cerebral Palsy Scotland, 10 High Craighall Road, Glasgow, G4 9UD
Tel: 0141 352 5000
Last updated 1 April 2020