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My cerebral palsy is a part of me – Barry Smith

Image of Barry smiling at the camera

As part of cerebral palsy awareness month, Barry has written a poem titled “My Cerebral Palsy is a part of me”. 

My Cerebral Palsy is a part of me.

Many people who don’t know me might see me in my power wheelchair and feel sorry for me.

Thinking I don’t understand what they are saying to me and what I don’t like because I can’t walk, and many people can’t understand what I am saying to them.

Yellow sky lights up when I got my high text communication aid, that has speech output on it after I type into it what I want to say.

Cats and Dogs like getting patted on the head but I can’t stand it.

Eyes might look but people may not want to ask what is wrong with you. It is the wrong thing to do in my eyes, that aren’t green like my cat.

Run away, I can’t physically do but in my mind, I can be who I want to be.

I want people to see past my physical disability and see me for the person I am.

I can hit a ball with my wheelchair, which feels good too.

A happy day is when people see me for the person I am.

Love shows from my heart because I am so happy when people see me for who I am.

Love shows in my eyes, people can see this which is so nice for everyone too.

People may walk by me and feel sorry for me. I don’t like that because I am a person who is just like you too.

A great person, I am. No need to look at my physical disability.

Love and understanding are what I need in my life, which is a gift of life.

Yellow sunlight helps me in my life and make me feel so happy.

I open my eyes each morning and try my hardest to do what I can in my life.

See me as a person, for who I am.

An apple might be hard to eat, but living with Cerebral Palsy is the same – but so good too.

Barry Smith

Tags: Cerebral Palsy, Physical Disabilities

How I look after mental and physical health as a disabled teenager – Melissa Cassidy

As part of Cerebral Palsy Awareness month, Melissa shares how she looks after her mental and physical wellbeing as a disabled teen.

Melissa is a young author and disability activist who has cerebral palsy. Growing up, writing was the most effective way she could communicate. Melissa has her own blog called Buttons and Ramps which you can find here – https://buttonsandramps.wordpress.com

How I look after mental and physical health

Being disabled and attending mainstream school can be a lot for me sometimes and despite being a relatively happy person, I have times where I drop the ball on making sure I stay healthy. So I thought it might be helpful to share some of the things I do to keep myself both physically and mentally well.

When it comes to physical health when you have cerebral palsy it’s often hard to find the balance between doing enough activity to keep your muscles strong and taking enough rest so you don’t burn out. I find this difficult as someone who loves learning, working, sports and essentially most creative or physical activities. I’m constantly working on projects like my blog, or my social media and sometimes I forget that everything I do costs me energy. So recently I’ve been working on striking this balance by accepting the fact that sometimes I need to just say no to things; saying no to going out, to going to my usual clubs, and sometimes saying no to opportunities. Being able to understand and accept my limitations has been really valuable because it allows me to conserve energy for things I really care about and want to do.

Another thing I do to take care of my physical health is making sure I divide my time equally between being in a wheelchair and walking around. Since I spend most of my day at school in a wheelchair, I generally avoid my wheelchair outside of school. I’m extremely fortunate to be a ambulant wheelchair user and I often try to take advantage of that by picking and choosing when I’m in my chair and when I’m up and about.

I have found my mental health is much harder to take care of as a teenager with cerebral palsy. I have an amazing support network around me which makes life easier but I find that often having a physical disability takes a toll on how I manage my thoughts and feelings. As I previously referenced, my energy is really limited and this can make it hard sometimes to process everything going on which becomes stressful. I think because CP is so physical, people don’t consider the impact it has on our mental states. This as well as the social challenges and physical difficulties adds up and can ultimately be quite draining. But there are things that I have found that really help like trying to openly communicate how I feel to someone close to me just to get it out there, or taking hours out my day to just sit and watch TV and switch off. It sounds like common sense but I think people often don’t understand or downplay the mental side of being disabled.

Whether you’re disabled yourself, a parent or carer of someone disabled or even just know a disabled person, it’s important to understand how their mental and physical health may be impacted by different things and strive to be more accommodating of this.

Tags: Advice Information and Support, Cerebral Palsy, Education, Physical Disabilities, Support for Young Adults

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