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An interview with Jack Hunter by Jack Hunter

Hello Cerebral Palsy Scotland readers! I hope you are well. My name is Jack Hunter and I’m going interview myself. No, I really am. I’m sitting here writing this at my laptop. I am speaking to you now from the past.

But before I start, I want to thank CP Scotland for their support and this opportunity to promote my new play One of Two, which is premiering at Summerhall, as part of this year’s Edinburgh Festival Fringe.

Ok let’s start:

Hello Jack.

Hello. Good to see you.

What is your connection with CP Scotland?

I am very happy to continue my association with CP Scotland.  And in fact, it goes a long way back. My twin sister Bec and I both have CP, and we used to come all the way down from Inverness to the centre to receive specialist physiotherapy treatment. Of course, that’s when it was known as Bobath Scotland. I still remember going to the centre, when I was wee.  One time In order to measure my gate, the team put dozens of little light bulbs on my body. It kinda looked like a motion capture suit, in a fantasy film. It was so cool! The centre does some fantastic work.

In 2019, I spoke at, what I believe was, the final Bobath Scotland Conference, with the Artistic Director of Birds of Paradise Theatre Company (BOP), Robert Softely Gale – who also has CP. We were speaking about a documentary they had produced in parallel with their 2018 Fringe smash hit My Left Right Foot – The Musical. The film was called You’ve Got to be Ballsy: Stories from the Frontline of Cerebral Palsy and the idea was for me to interview an array of young people with CP, to give them a platform to share their experiences of what being a young disabled person is really like. It was a real privilege to speak with all the people who contributed: artists; swimmers; actors; musicians – and Bec… But you know, I’ve heard all her stuff before… She won’t be happy with that. No, that’s not true. I think for both of us it was a revelatory experience. In fact, if anything it brought us closer.

Through the conversations I had, the aim of the film was to give disabled people, an underepresented group across society, a public platform, to spotlight  discrimination and abelism.. In addition, the filmed participants challenged prevalent  misconceptions about disability. I’m really proud of the film for this reason; as it enabled the  individual voices of young disabled people to be heard. It’s one thing to raise awareness regarding the challenges disabled people face, It’s other to accept the expersonce of every disabled person is diffrent.

Very insightful Jack. Now tell me what is One of Two, what is it about?

One of Two is an autobiographical play that tells my shared story, with Bec, of two twins growing up with Cerebral Palsy. It’s a comedy drama, with shades of light and dark, as well as a lot of lunacy.

On the face of it, we find a very sad Jack (AKA me) alone in his flat, struggling to come to terms with the end of a relationship. He’s trapped in his grotty wee bathroom with a Star Wars inspired “Darth Tater” Mr Potato Head. What’s not funny about that? A revelation occurs to Jack (It’s funny talking about yourself in the third person. You can tell I’ve got the appropriate amount of distance from it now) that he has always needed to be paired with someone else. A friend. A partner. A twin…

Ultimately, the audience will go down the rabbit hole, or perhaps more aptly the toilet pan, with Jack through his shared past with Bec, past on a journey of self-discovery. Creating the show has been a lot of firsts for me. It’s my first ever professional writing credit and it will be my first ever acting job at the fringe – I’ve been living in Edinburgh for nearly ten years, so it’s about time really.

None of this could be possible without the support of a few organisations. Firstly, a big thank you to Summerhall for awarding me the Mary Dick Award. I’m buzzing to be part of their fringe programme. I’m incredibly grateful to Birds of Paradise Theatre Company for their support as producers. I’m excited that Robert Softley Gale is coming on board as director too! I’m sure we’ll have a lot of fun.

I hope that’s enticed you into coming along.

Well… I’ll definitely be there. Why did you want to tell this story?

My relationship with my sister has had an everlasting influence on me and has undoubtedly shaped me as a person. So, in order to understand where I stand in the world, I wanted to unpack this unique relationship.

Without being too cerebral… the play focuses on the disparity of  Bec’s and I’s experience of growing up with CP.  As young kids  our early years were near identical; however as we grew older, key differences have arisen throughout our lives.

You should know that I have a mild manifestation of CP (I walk with a limp as my left leg is shorter than the right), whereas Bec has a slightly more pronounced manifestation (she is a full time wheelchair user).

None of this should matter as people should be able to live their life regardless of their impairment but society has disabled us to varying degrees, Bec more so than me.  I wrote this play because I wanted to investigate this disparity of experience; the inequity of experience between disabled and non-disabled people, but also within the disabled community itself. For instance, Bec and I’s experience within secondary and further education was vastly different. This primarily came down to contrasting attitudes of how educational professionals and fellow students perceived us and our abilities. I think the  play boldly examines the partial failings of our education system and the methods of how it supports young disabled people.

Although the play has a strong theme of disability, it’s also a coming-of-age story, and I hope will have universal appeal with a wide audience, beyond being pigeonholed as a “disabled” story. I know “coming of age” is a bit of a cliché. A bit generic.  A bit bland. But I don’t think it is a style of story often explored from a disabled perspective Bec and I have faced a few barriers throughout our lives; and I think as a society we often are conditioned to not talk about how this impacts our own mental health or self-worth. And at times we are hindered by and urged to adhere to idealistic societal expectations. But in the words of Fleetwood Mac: “you can go your own way…”.

I assume the play will be seen by a predominantly non disabled audience. My hope is that the play will not only raise awareness of the societal barriers that disabled people face, but to provoke the audience into reflecting upon their own perceptions of disability. This is in now way to  alienate the audience. The world, now more than ever, is so polarised. In my mind you’re not going to instigate change by demonsing anyone. I want to bring the audience  with me and keep them on side. How do I do that, you ask? Jokes. Lots of Jokes…..

Wow, how thought provoking!

Why, Thank you.

Why should people come see the show?

First of all, I should say that technically it’s a one man show. On the surface, that doesn’t sound very unique. One person shows are ten a penny at the Fringe. However, Bec will be with me, not in spirit, but through the wonders of multimedia. Voice over, projection and what not. So, she will have a presence. We will converse. And a jolly time will be had by all.

The play has an interesting blend of performative styles. Obviously, it’s theatre. There’s no getting away from that. But that’s not bad in the slightest. It means you can fit in a lot of styles. Not to say that it’s slapdash, you understand. It’s been honed, crafted, and mushed together into a smooth theatrical pulp. The key ingredients are: a slice of silliness, a sprinkle of stand up, and a slurp of spoken word. So hopefully, there’s something for everyone, unless you want interpretive dance. I can’t help you in that department.

However, I do feel that the main selling point of this play is the story. I believe it is truly unique.

What’s your relationship with Bec like?

Oh, we’re incredibly close.  We don’t see each other as much as we used to, what with Bec living in Inverness and me living in Edinburgh. She has a great phrase “It’s a relationship that doesn’t require maintenance” which I think is so true. We can go ages without seeing each other, but the closeness is still the same. I think if you have that shared lived experience, you will always have a tight bond. But we definitely don’t agree on everything.

Having Bec involved in One of Two is incredibly Important to me. Both her and I care immensely about supporting disability rights and raising awareness. Whether it’s through my creative work, or through Bec’s disability training sessions with Naked Brains Consultancy. We want to instigate discussion and social change.

Are there, in your mind, any misconceptions that surround disability?

I think there are probably a fair few floating around. However, I think maybe the biggest dual misconception held by non-disabled people, is that disabled people are either inspiring or destitute. Inspiring because somehow we have defied the odds stacked against us to obtain a ‘normal lifestyle’: job; home; family. That kind of thing. Or we’re destitute, as those that have been disabled by society are left without support and slip through the cracks, leaving them with nothing.

This contrast in views, in my mind, is clearly down to a lack of socio-economic provision to support disabled people, but is also due to a lack of awareness across society. I hope that One of Two can shed some light on this gross inequality.

Thank you, Jack.

You’re welcome.

And finally, when and where can we see One of Two?

One of Two is at Summerhall in Edinburgh, from the 3rd – 28th of August, at 11:45am. The venue has level access, there is audio description and captions at every performance, we are doing four BSL interpreted performances, and one performance will be Relaxed.

If you want any more information, you can follow me on Twitter and Instagram @jack_hunter95, and you can find out full details on the Birds of Paradise website.

Come along, It’s going to be a blast.

Thank you for taking the time to interview with me, Jack.

You’re so welcome.

 

Tags: Cerebral Palsy, cerebral palsy scotland

Interview with Kirsty Soutar

In the spring, I interviewed a woman called Kirsty who I have known for several years. We first met at an inclusive dance group with the organization Paragon Music, and we have kept in touch regularly since. I thought it would be good to hear from Kirsty and her experiences of living with a disability.

Kirsty has cerebral palsy which affects her mobility, speech and she also has some learning difficulties including long term memory loss, reading and writing. Walking and communication can be challenging at times which means that Kirsty finds getting from A to B hard by herself. She uses a walking frame to support her to walk but explains she can’t walk unaided. Kirsty has one personal assistant who supports her for a certain amount of hours during the week, they help her to keep track of everything as her CP also has an impact on her day-to-day life and organization skills. Kirsty has a very supportive family who are always there whenever they are needed to help her – she lives a very busy life but just needs a bit of assistance from time to time.

I was interested to get Kirsty’s thoughts on how society acts around disability – she explains that most people are overly nice because she is disabled which is annoying sometimes. She has noticed a difference in people’s attitude since before covid. Pre pandemic it seemed people were getting a better understanding of disability, but Kirsty says she feels that it has gone back the way which is interesting. There is improvement that she is noticing but still a long way to go as people assume that CP affects everyone in the same way which isn’t true at all and finally, people always see somebody who is disabled and expect them to be in the para-athletics which is frustrating as you just want to live a normal life.

Kirsty works five hours a week at H1 Healthcare as a data analyst, she got chatting to a woman who works there at a ‘Bobath Ball’ and went for the job interview a week later which was successful. Kirsty loves to help others in any way that she can and volunteers at the Royal Hospital for Children in Glasgow. Her role involves interacting with the kids and keeping them occupied while they are attending the outpatients waiting area – this lets Kirsty use her childcare qualifications too but unfortunately her volunteering is still on hold due to covid.

Kirsty lives an active life; she enjoys attending an art club once a week and has an interest in sport- she is part of red star athletics and a Paralympic futures academy where she trains to throw the discus and the cub. Fitness comes into it as Kirsty goes to the gym and swims too, so it is a full package. Out-with these activities, she has a love for baking, cheering on Glasgow city football club and going on trips away to the Scottish islands.

Kirsty has recently moved into her own accommodation, so I was really interested to hear about how she was doing – this was a big move for Kirsty, she was very anxious and nervous but also excited at the prospect of getting her own flat. At the beginning she explains how she was unsure of her surroundings as she is someone who gets lost easily so she got support from her personal assistant to learn how to get around using public transport etc.

Like everyone it takes time for you to settle into a new area and this was the same for Kirsty – she is now familiar with her neighbors and has met new friends. Everything about having your own house was on Kirsty’s mind especially paying bills on time but she was glad she was able to get assistance with this. The transition was different from what Kirsty expected as unfortunately she wasn’t living at her family home before she got her flat due to a house fire – so this made her moving experience easier. She is delighted with her own place, and it means a lot to call it her own home.

Thank you to Kirsty for participating in this blog, I will leave you with a quote from the woman herself “Don’t give up, live life to the fullest every day!”.

A Blog Post by Bernie Hunter

Become a Friend of Cerebral Palsy Scotland

Jon and James through the years

Join us on our mission to improve the lives of children and adults with cerebral palsy in Scotland.

As a Friend of Cerebral Palsy Scotland your regular donation will provide vital physical and emotional support so that every person with cerebral palsy in Scotland can reach their full potential.

Apply for Better Start

Better Start

Better Start is open to children with cerebral palsy age 2-14, with places funded by National Lottery Community Fund.

This is much more than volunteering to me

Volunteers’ Week runs every year between 1-7 June. It’s a time to recognise and thank volunteers for all they contribute to the voluntary and wider sectors, communities, and society as a whole.

Here’s one of our volunteers, Bernie Hunter, explaining why she volunteers for us at Cerebral Palsy Scotland.

“I started volunteering for Cerebral Palsy Scotland in 2017 but 22 years earlier in 1995, I was actually one of the first babies to attend Cerebral Palsy Scotland for therapy as I have CP so I have known about the charity for all my life.

Bernie smiling“In my younger years, the charity really supported me so when I got older – I wanted to give something back.

“Pre-pandemic, I was in the centre every week at Cerebral Palsy Scotland. I enjoyed being in an office environment and having face-to-face communication with the fundraising team. Sometimes I would help out at bucket collections plus doing my own fundraising events for Cerebral Palsy Scotland.

“Like everyone else, I had to find a new way of working when Covid hit but I’m glad to say that it hasn’t stopped me from volunteering.

“I write blogs about everything relating to Cerebral Palsy, design images & videos for social media, fundraise, look for articles about CP and have recently started to interview other people who live with CP – giving them opportunities to share their experiences.

“It is a joy to volunteer for Cerebral Palsy Scotland – very rewarding. This is much more than volunteering to me.”

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