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Anyone can dance

This week, blogger Bernie Hunter shares her experiences of learning to dance, the adventures it has taken her on, and what happened next.

Dance was a big part of my teenage years – not many people know this so let me take you into my dance world. In this blog, I will give you an insight into my performance days including sharing my experiences of rehearsals and shows.

In 2009, I came across a music and dance workshop that was taking place at a local theatre. It was during the summer holidays so I was up for trying something new even although I hadn’t danced before. The group was called ‘Make Music Move’ (now M3) involving professional dancers and musicians from the organisation Paragon Music. Paragon, is a music charity that helps people with additional support needs to create music and dance. They teamed up with a wonderful choreographer, Caroline Bowditch as well as another dance company to create M3.

Everyone was welcomed into the workshop, it was very inclusive- the group didn’t see disability and as a teenager, that really helped me.

I watched how the dancers worked with the participants and that was when I realised that this was something special. After a couple of sessions, I started to take a real interest in dance. I attended M3 as a participant dancer for 5 years- I had many opportunities handed to me on a plate that I will always be thankful for.

M3 ran regularly with rehearsals happening throughout the year plus intensive weeks every so often, this was when we were creating a piece. We had a number of performances to do as part of dance shows in theatres. This is where the opportunities came in – I got to perform in the Theatre Royal, Glasgow…what a feeling and I also travelled to Dundee Rep Theatre annually too. That doesn’t happen to people like me and I don’t mean because of my disability, just in general.

My theatre memories will always be a big part of my dance days, the experience is just phenomenal. A real mix of feelings when you are out on that stage of excitement but lots of nerves too. One memory that comes to mind is when I was doing a solo dance and an hour before the show in Dundee, I found out that not only that I was the first member of M3 on stage but I was opening the WHOLE dance show…total fear waiting side of stage but such a joy to do.

Talking of my solo dance piece, I actually created it myself in my living room. I went into rehearsals the next day and told my dancers that I made a dance…they couldn’t believe it and I was so thankful that it made the stage. I was told by Caroline that I could go down the dance route as a future and that meant so much to me.

I never thought that I would be a dancer due to having Cerebral Palsy with my movements and being in a wheelchair but anything is possible.

The professional dancers were very good with me, we worked together and came up with moves that I could do in my chair. A couple of years into my dance journey, I decided that I wanted to come out of my wheelchair to dance duets…it was the best decision ever. I could do so much more…it was freedom. My fellow M3 participants followed me and at one point, everyone was dancing out of their chairs!

As I got older and life got busier, I had to leave M3. Unfortunately, I couldn’t attend all the rehearsals. Although that this was the case, I helped Paragon Music run M3’s social media accounts which then leaded to me being a volunteer with Paragon- I am the charity’s Digital Development Assistant now.

I would like to give a big shout-out and thanks to Paragon’s creative director, Ninian Perry and former dance artist in Association with Paragon, Caroline Bowditch for supporting me through my dance journey- I really learnt a lot from two of the nicest people ever. All of the dancers and musicians were like a big family and I am so lucky that I still keep in touch with friends from M3- I will always be grateful for my dance days.

Mini Q&A

Favourite Memory – Performing in the Kings Theatre Royal to ‘Let music make you move, set your feelings free’

Most Pressured Show – Leading a dance piece at Macrobert Art Centre, Stirling. 8 beats!! If I counted it wrong then it would have affected our whole piece

Do I miss dancing? – Yeah, I do and I would go back if there was an opportunity

Favourite Venue – Kings Theatre Royal

Barry: Respite care and holidays

Respite care and holidays

Hello, it is Baz Smith here again with a blog and I am going tell you about two holiday centres which are run for disabled people. The centres I am talking about have 24 hours care for people who need it.

The first one I am going to talk about have four centres in England. The nearest one to Scotland is in Southport and it is call Sandpipers. I went there about six weeks before the first lockdown started, thank god I was back up the road before the UK told everyone Stay at home in March last year. The centre has Nurses and Careers all around the clock to meet the needs of disabled people. It has a bar for anyone who likes a drink. The centre looks onto the sea, which looks nice when the sun goes down at night. As well it has an indoor swimming pool. I knew before COVID19 you just need ask a member of staff and they would get it planned for you to go in with Volunteers to watch you when swimming.

You would get three meals a day. Breakfast is cooked for people who want it, or you can have a cold Breakfast. If you need help to eat or your food cut up someone will help you. When eating your breakfast have a look at the Dinner (Tea) menu and if nothing you like was on it, please tell a member of staff and they will let the cook know and they will come and ask what you want to eat.

Before COVID-19 they did bus run to get people out, but I do not know about now. Most days the Bus runs to visit some places liked the shops in different towns. If you want go you can go to four places a week. A member of staff would come around on a Monday and tell them what trips are on for that week, and the person picks. Then when everyone has picked the staff tell everybody when they are going out and who will be going with them to meet their support need. On the day you are out you are given a packed lurch before you go on the bus. All their buses have lift for wheelchair, or if you are not good on your feet.

You might be asking yourself now can I get there from Scotland, if you get the train down you need to change at Waling then walk about 5 minutes’ walk. If you are in wheelchair you must book Trains and Ramps. When you get to Southport you get cab up to Sandpipers or walk up, which would take about 30 minute. You will pass by the smallest pub in England but it doesn’t have any Wheelchair access.

In every bedroom there is your own Tv and en-suite toilet with hand rail and a wheelchair access Shower and Shower Chair if needed, as well over head Hoist and the beds can move up and down. There is an on call button. The night staff can do night check if for anyone who needs it.

If you do not want to go Sandpipers, they have three more Centres around England, to find more about them please visit https://revitalise.org.uk/

The next Holiday place I am going tell you about is Calvert Kielder.

You can go there with your family or friends. Or, if you are over age of 18 you can go on respite and let their Staff take care of you.

At Calvert Kielder they have got a respite team for any disabled person over the age of 18 who wants go on holiday by themselves and get their support needs met by the team at Kielder, like washing, bathing, dressing and feeding. When booking you tell them your needs so the staff know how to support you on your holiday.

If you are a part of the respite team, the staff will make a support plan up with you, so all your needs will get met. You will stay in main centre where the carers are on around the clock. If you are on respite team you get three meals a days and a programme of things do is setup. for liked going a Buggy and water sports no matter which age you are.

Family who have someone with a disability can go and stay in a little house and ask if they can take part in things to do. It has a swimming pool and a hot room to. Some schools go because it is an outdoor holiday. If you need help to get there they would pick you up anywhere within 50 miles for a small cost, they have wheelchairs and all the aids you could think of.

World CP Day

Participating in World Cerebral Palsy Day

Cerebral Palsy Scotland is keen to learn and engage with other organisations nationally and internationally to share learning about care and support for people with cerebral palsy.

Every 6 October, we participate in World Cerebral Palsy Day.

Our main contribution to World CP Day is holding our annual Cerebral Palsy Scotland Conference and Exhibition.

In 2019, we also participated in the #GoGreen4CP initiative, an international campaign to light up buildings green to raise awareness of cerebral palsy. See News: Celebrating and raising awareness on World Cerebral Palsy Day.

National alliances

Cerebral Palsy Scotland contributes to a number of national alliances and networks.

All-Party Parliamentary Group on Cerebral Palsy

Cerebral Palsy Scotland’s CEO, Stephanie Fraser, sits as an officer on the APPG on Cerebral Palsy. The APPG on Cerebral Palsy recently published its first report, looking at the role of early intervention in children with CP.

National Advisory Committee for Neurological Conditions

In December 2019 we were involved in helping the Scottish Government produce the first national five-year plan for neurological conditions: Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025. A detailed implementation plan is currently being worked on with early actions identified.

The implementation of the new Framework for Action 2020-2025 is being supported by the Scottish Government’s National Advisory Committee for Neurological Conditions. Currently, Cerebral Palsy Scotland’s CEO, Stephanie Fraser, is Chair of this committee.

The Neurological Alliance of Scotland

Cerebral Palsy Scotland is also an active member of The Neurological Alliance of Scotland. Our membership enables us to represent people with cerebral palsy’s concerns at a wider level and allows us to learn from the experience of other condition-specific organisations.

Health and Social Care Alliance Scotland (the ALLIANCE)

We are also a member of the Health and Social Care Alliance Scotland (the ALLIANCE). The ALLIANCE support Cerebral Palsy Scotland to ensure that people with CP are able to sit at the heart of design, delivery and improvement of support and services.

Scottish Parliament Cross Party Group on Disability

Cerebral Palsy Scotland attend the Scottish Parliament Cross Party Group on Disability. We engage with the Scottish Government Children and Families Directorate around the Getting it right for every child (GIRFEC) policy, and also feed into the Community Health and Social Care Directorate to support people with communication needs, particularly those who require Augmentative and Alternative Communication (AAC).

Counting people with CP

Asking the Scottish Government to count people with cerebral palsy

At present, statutory services across Scotland are not able to identify how many people with cerebral palsy use their services. Cerebral Palsy Scotland believes that, if statutory services do not count people with cerebral palsy then people with cerebral palsy are not counted and valued by service providers.

We are working to change this and to hold the Scottish Government to account so that we can support the development of systems and processes for service planning based on evidence of need.