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A life of Bobath therapy: Ewen’s story

Ewen and family

For Ewen McIntyre, soon to turn 60, the Bobath concept of therapy has been – and continues to be – a central part of his life.

Despite the challenges of living with athetoid cerebral palsy, Ewen’s life is full of friendships, fun and very much good fortune. Growing up in sunny California, Ewen continues to enjoy life and lives happily at Capability Scotland’s Upper Springland in Perth. And for the last seven years he has also worked directly with Cerebral Palsy Scotland in Glasgow.

Ewen, Ann and Donald
Ewen, Ann and Donald

Ewen’s parents, Ann and Donald, grew up as neighbours in Edinburgh and on their marriage in 1957 Ann joined Donald in the college town of Claremont, California, where Donald taught geology for most of his career and where Ewen was born in July 1961.

It was several months until they became aware that there was something unusual about Ewen’s physical development progress. In due course on a visit to a hospital in Los Angeles, this problem was diagnosed as a form of cerebral palsy. On explaining to the doctor they were shortly to be visiting Ewen’s grandparents in Scotland, they were advised to include an appointment at the Bobath Cerebral Palsy Centre in London, and in August 1962 were able to arrange a consultation with Mrs Bobath. They were encouraged by her assurance that the Bobath approach to physical therapy could help Ewen to progress if the family were able to make a return visit to work with her and her team the following summer.

Ann continues, “We were, of course, eager to follow up on this offer. Happily, when Ewen was two years old and thanks to a financial windfall, in 1963 and subsequent summers we were very privileged to benefit from these annual visits to London and enjoy and learn from Mrs Bobath and her helpful staff. Each visit in its own special way, was a remarkable happy and heart-warming experience.”

Ewen and Mrs Bobath
Ewen and Mrs Bobath

“Dr Bobath gave a strong medical background to the clinic and for both of them, Mrs Bobath’s work with patients and students was their supreme delight and a unique gift to families like our own who were adapting to life with someone challenged by cerebral palsy. As a couple, they had so much fun together, teasing each other with jokes and laughter while all their energy and interest was poured out on working in concert together to help their patients at their very busy clinic. And now sine 60 years on, this London centre continues to retain the Bobath name and its fame as an international teaching centre for physiotherapists.”

“In 1963, for us as new parents, these visits were always a time of learning, of interest, encouragement and pleasure as we tried to increase our understanding of how best we could help Ewen. And we were greatly cheered by spending time with other young families and adults with cerebral palsy who, despite their challenges, were able to live full and interesting lives. On some of our London visits we lodged at the home of a friend who lived just around the corner from the Bobath clinic, where the Queen’s horses went clattering by each morning while out on their daily exercise. Perhaps it was no wonder that Ewen himself came to be an enthusiastic horse rider and, in 1980, won an award at the National Cerebral Palsy Games in Texas, USA!”

Ewen horse riding
Ewen horse riding

“These annual summer visits led to a personal connection between our two families. When Mrs Bobath was invited to Los Angeles to deliver a lecture there we were greatly honoured to have the couple spend the weekend with us at our Californian home. We were delighted to share with them the fun of Donald leading us all on a geological visit to The Joshua Tree National Park. The unique and beautiful rock formations there were indeed of special interest to Mrs Bobath who enjoyed sculpture as a hobby.”

“In 1989, on Donald’s retirement from teaching, our family chose to return to our native Scotland so that Ewen might benefit from linking up with Capability Scotland’s Upper Springland centre here in Perth. This has indeed turned out to be an excellent move but some time past before we learnt of the existence of the Bobath Scotland centre in Glasgow.”

“So a new chapter has opened on Ewen’s life and our regular visits to the centre over the past seven years have become a highlight of learning and of helping Ewen to hold his own. He continues to benefit as well as to greatly enjoy his work with the skilled and patient senior physiotherapist and friend Philip Vervaeke, at what has wisely been renamed Cerebral Palsy Scotland. The therapy Ewen receives there is of superbly high quality. I would say that Ewen has a confidence that he probably wouldn’t have had otherwise. The lovely, cheerful way that Philip works with people, Ewen just really responds beautifully to him. And currently, in keeping pace with these difficult times, some helpful virtual therapy sessions are ongoing between Perth and Glasgow!”

Ewen at Upper Springland
Ewen at Upper Springland

“For Ewen as an adult, the object and the benefits from Bobath-style physiotherapy certainly succeeds in helping him hold his own by slowing the pace of further deterioration in his physical well-being. Ewen can sit up straight – though sometimes only on reminder! – he smiles and laughs his way through each day as a happy and physically comfortable person. And from the bottom of our hearts we are grateful to all who help him. For the important part which you play, a very big thank you to Cerebral Palsy Scotland!”

Tags: Bobath therapy, Capability Scotland, Cerebral Palsy, cerebral palsy scotland, Therapy

Annual Review – what we’ve been doing to help

Child playing

Cerebral Palsy Scotland has published a round-up of how we have supported people with CP and their families over the past year and a half.

Our latest Annual Review sets out what the charity has achieved between April 2019-March 2020. We have also included a section on how we have helped people over the coronavirus pandemic.

Between April 2019 – March 2020 we provided a total of 990 individual therapy sessions for children and adults with cerebral palsy, supporting people to build skills, confidence and knowledge of their condition. We ran therapy-led groups for people of all ages, hosted a national conference and trained health professionals.

We also continued our work looking at the state of mental health support for people with cerebral palsy and how we can use Clinical Psychology to enhance our own services.

Most visibly, in April 2020, Bobath Scotland changed name to Cerebral Palsy Scotland.

The arrival of coronavirus and national restrictions has led to big changes for the charity, but we are determined to keep supporting the CP community during these strange times. We are providing online information and videos, virtual therapy sessions, and have created a safe environment to allow us to provide hands-on therapy sessions.

Commenting on the publication of the Annual Review, Stephanie Fraser, CEO of Cerebral Palsy Scotland said:

“I am really proud that Cerebral Palsy Scotland has achieved so much over the past 18 months and helped hundreds of people with CP build skills, knowledge and confidence. Rebranding the charity has been a big step forward in raising the charity’s profile so that we can support even more people with cerebral palsy across the country in the future.

“As always, I want to extend my sincere thanks to the CP community, donors and funders for their continued support as we work harder than ever before to provide services for children and adults with CP.”

Download Annual Review 2019-20

Tags: annual review, Cerebral Palsy

Watch again – Conference 2020

It was wonderful to bring together so many people at the online conference to talk about issues facing people with CP, their families and the people who support them.

It was a busy and useful day even if we could not come together in person. We talked about COVID recovery, education, virtual sessions, employment and more.

We know not everyone who registered was able to attend, or attend all of the sessions and others are keen to watch some again. They are now available on our website here – Watch again.

The online exhibition is still live, please take a few minutes to have a look at films from partners too.

Please do get in touch if you have any questions or would like to arrange a free post lockdown session.

Contact us on 0141 352 500 or HERE

You can keep up to date on news and information by signing up for the newsletter or following us on social media.

Tags: Cerebral Palsy, conference

Thanks to funders for supporting our coronavirus response

Lockdown, shielding and restrictions have had a major impact on people with CP and their families. Many people are feeling isolated and their physical and mental health have been affected because of disruption to the support and services they would normally get.

Cerebral Palsy Scotland has received more than £6000 from two funders that is helping to provide support and therapy for people with CP and their families during the coronavirus pandemic.

We are delighted that Foundation Scotland’s Response, Recovery and Resilience Fund has given Cerebral Palsy Scotland a grant of £5000. Foundation Scotland are official Scottish partners of the National Emergencies Trust, which launched a UK-wide fundraising appeal in partnership with the British Red Cross to support local charities. Together with other funders, this money is helping to provide tailored “Post Lockdown Flexible Support Sessions” for people with CP.

These sessions are free of charge and available now. Open to children and adults, if there’s something in your life that isn’t going as well as it was before, you’d like some advice about activities or equipment, or you’ve noticed a change in your health, please get in touch.

These sessions can be done in-person or virtually – whatever suits you best.

And to help us deliver virtual therapy sessions, Yorkshire Building Society have given us £1676 to purchase two new laptops. Being able to buy new computer equipment has been vital in allowing our therapists to provide high-quality, specialist therapy digitally to people right across Scotland.

 

Thank you to Foundation Scotland and Yorkshire Building Society for helping us to continue supporting the CP community in these challenging times!

Cerebral Palsy Scotland trustee named one of the most influential disabled people in the UK

Elaine Boyd outside the CPS centre

Elaine Boyd, Cerebral Palsy Scotland trustee, was named on the Shaw Trust’s Power 100 List. The list, which is published each year, recognises the achievements of disabled people and we’re delighted to congratulate Elaine on being named one of the most influential disabled people in the country.

Elaine has never shied away from new challenges or being ambitious for herself or others with CP. Elaine is Cerebral Palsy Scotland’s treasurer, vice chair of ACCA Scotland and works at Audit Scotland, where she heads up the Quality assurance Team. She continues to learn new skills and try new activities to see what she can do.

Elaine is one of our board members with lived experience of CP and has been instrumental in shaping the work we do, particularly in speaking up loudly for people with CP, how we support adults and is a regular contributor to the Cerebral Palsy Scotland conference. She is ambitious for people with CP in the work place too and believes everyone can achieve. She said in a recent interview with ACCA:

Photo of Elaine Boyd“I am humbled to be named in this list. I have been determined to fight against people’s low expectations for disabled people. I was told I would have to work in a shop when I left school, which made me furious because I wanted to achieve other things and so I pushed through the barriers.

“There is a perception that if you have a disability, you can’t have a good career or an exciting life, but if you work out solutions to the barriers in your way, you can do it.”

In the past couple of years, Elaine has received her flying wings, conquering her fear of heights. She was awarded a Flying Scholarship for the Disabled and graduated at the Royal International Air Tattoo in 2019. And just before her 50th birthday, she took up skiing in Glasgow.

Ian Johnstone, Cerebral Palsy Scotland’s Chairman said:

“Elaine is a great board member and challenges us at all times to ensure that the voice of people with CP is at the heart of our decisions and strategy. She’s a fantastic ambassador and role model, particularly for young people with CP. She’s never stopped pushing to see what she can do and encourages so many others around her. We’re very proud of her achievements and that she is recognised in the Shaw Trust’s Power 100 List.”

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