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World CP Day: What can you achieve?

Cerebral Palsy Scotland volunteer Marion

The Biggest Achievement in My Life: Marion remembers the boost of achieving a goal and getting a qualification.

Our volunteer, Marion has written a blog about her experiences of studying a computing course at college while talking about how CP didn’t stop her from achieving her goal. Thank you to Marion for this wonderful blog, a perfect read ahead of World CP Day, read what she has to say:

Hello everyone,  I hope everyone is well  and keeping safe.

As Cerebral Palsy Day 2020 is approaching us,  I thought I would share with you  my greatest achievement in my life. This blog might encourage you to take up something new!

When I was 18 and when I finished school I went to my local College to do my ECDL (European Computer Driving Licence) .  My dad managed to get me on the course by talking to the College and they agreed to have me on the course. I loved being a student  with a disability as I was in a class with mostly able bodied students.

I enjoyed going to College  by myself with a support worker, I felt it was a great opportunity for me to do something independently. The College was very accessible and I liked going to the café and meeting my friend.

I got excellent help from the College’s unit for people with disabilities. The special needs advisor helped me set up my Intellikeys keyboard  so I was able to use their  PCs.  They even fought for me to get extra time for my exams, that took time,   but we got there in the end. Although I was later than all the rest of the students to take  my exams, I was the 3rd top student in the class.

I had always been interested in computers so the ECDL was right up my street. I started on my first computer when I was 3 years old when my Dad set me up on a BBC B computer.

When I did this course 18 years ago, there were 7 modules which included, Word  Processing, Spreadsheets, and Information and Communication.

Then after my ECDL was finished I got a lovely surprise and won The Provost’s Community Award  for Special Needs Adult, The prize was a trip to  London and while there I went to see Chitty Chitty  Bang Bang

I have used my skills that I have learnt from doing the ECDL to work in 2 offices,  and had my own little business making stationery.

Having Cerebral Palsy didn’t stop me from achieving a European Certificate for my computer work, and my advice to anyone who is thinking of doing something that you are wanting to do is to keep at it. You never know what you can do!

Marion Burns, 29th September 2020

Marion award photo

Tags: Cerebral Palsy, Education

World Cerebral Palsy Day

What is it? How can you make your mark?

Bernie World CP DayOctober is usually the month of Halloween, but did you know that there is a very important day before it? Yes, that’s right – it is World Cerebral Palsy Day on the 6th! The special day is to raise awareness about the disability which affects 17 million people, around the world. There are many ways that you can show your support for World CP Day.

We all know that the world is a very different place this year due to the pandemic but we can still support Cerebral Palsy, in our own way. World CP Day is a great opportunity to tell people what the disability means and to make people aware that CP doesn’t stop anyone from achieving amazing things in life. The campaign for this year’s event is called ‘Make Your Mark’ which encourages people to share their achievements and experiences of living with CP.

There are many different ways that you can Make Your Mark:

  • Share your story of CP by going to the ‘World CP Day’ website and adding your story to the map
  • Share an achievement you have accomplished- old or new
  • Going green for CP by wearing the colour green or decorating your home in green as part of the #GoGreen4CP campaign which we have seen, in recent years

A big part of World Cerebral Palsy Day aims to make sure that everyone has easy access to support services, this is extra important this year. “To mark this day in support of Cerebral Palsy, I will be making my mark by creating a video to share my story of living with CP which will be posted on social media. I want to get the word out there that having CP, doesn’t stop me from doing what I want to do, yes life can be challenging but I always find a way”- Bernie Hunter

We at Cerebral Palsy Scotland would love to know what you are doing to mark World CP Day, let us know by going to our social media channels- we are ‘@CpScotland’ on Twitter & ‘@Cerebralpalsyscotland’ on Facebook.

Come on let’s raise awareness and turn the world green for Cerebral Palsy on October 6th 2020!  #MakeYourMark #GoGreen4CP

 

Tags: Cerebral Palsy

Bernie: My education journey

Bernie

“Don’t be afraid to move on & try something new, you’ll find your path eventually”

Education is one of the most important parts of life, everyone has a right to learn. In this blog, I will give you an insight into my educational journey as I explain the different stages of school to moving onto college and how I found my path.

Early Education: I attended Richmond Park primary, the school was especially adapted for children with additional support needs. As I have Cerebral Palsy, I really needed to go to a school which could support me in the best way possible. Richmond Park had smaller classes which I was able to cope better with- even although my Cerebral Palsy didn’t affect my learning, it did have an impact on my writing and communication, meaning that I found it hard to keep up with my school work.

Bernie primary schoolThe school had flexible learning methods and suitable accessible equipment to make things easier for me. I still got taught the same as if I was in a mainstream school, it was just a different set up. The school definitely gave me the best start in life, having the right support in school, I was able to achieve so much. I had a communication device from a very young age, I used it to the best of my ability and it made such a difference throughout my learning experience.

In 2006, it was time to move onto secondary school. Everyone gets nervous when starting a brand-new school and I wasn’t any different. I had to adjust to a whole new way of school life such as new subjects, new people supporting me and changes in how I recorded my work. I was lucky as most of my friends from primary moved on with me to the same secondary school. It took me a while to settle in but when I did, I was set up for the next 6 years of my life.

I enjoyed most of the subjects at school, art and computing were my favourites. I found English really challenging as I couldn’t write due to Cerebral Palsy affecting my hand movements. I had a classroom assistant who would write for me but as I use a communication device, it wasn’t the right set up for me. I found a new way to record my work independently which was using a laptop with a big keys keyboard.

Bernie student of the yearIn 4th year, I studied Modern Studies at standard grade level so I had an exam at the end of it. This was my first exam so I worked so hard to prepare for it- I completed 10 past papers and 9 times out of 10, I passed. I was ready, I felt confident but unfortunately time got the better of me. The Scottish Qualifications Authority (SQA) only gave me 50% extra time which wasn’t enough for my second paper so I ended up failing the exam. It was so disappointing as I knew what I had to do.

I wasn’t going to put myself through another exam for it to happen again so I just picked to do units and build my qualifications that way. I had many achievements throughout my secondary school experience as I always tried to work to the best of my ability- I won an award in an art competition and I left school winning the ‘student of the year’ trophy which was a big surprise to me.

Bernie at collegeFurther Education- In 2012, I became a college student at Glasgow Clyde College: Langside Campus. The course was called ‘Transition to Mainstream’ which my school suggested that I go on as I didn’t know what I wanted to do at that point. I liked the course but it wasn’t challenging enough for me, it was aimed at people to learn everyday skills etc. to live independently. I stuck at the course to gain more qualifications and it gave me a great work placement opportunity too.

I had a real interest for computing so I applied to go on a mainstream admin, business and computing course and it was the best move that I made. I didn’t have a communication device at the time but I still managed to complete the course successfully which gave me the chance to go on and study another computing course at a higher level.

A year later, it was time to say goodbye to the student life. I left college having gained so much more knowledge, I wanted to make good use of what I had learned so I started to volunteer for two amazing charities that assist people with additional support needs. I currently volunteer for Paragon which is a music charity and the other is Cerebral Palsy Scotland. I help create social media content, design promotional posters and write blogs.

I love my volunteering jobs and I am also getting to use the computing skills that I learned at college. I left school and I didn’t really know what I wanted to do with my future- not everyone wants to go to university or finds a career straight away so I’m lucky that I found my own path which has led me to where I am today.

 

 

 

Tags: Cerebral Palsy, Education

Jon McFarlane: My return to therapy

What’s it really like to have in person therapy again?

Last week, I returned to Cerebral Palsy Scotland for a therapy session with Filip.  I was given an allocated time, and when you arrive at the centre, you are required to call the number of reception as a means of avoiding touching the entry button. When you enter, your temperature is taken, and you have to go straight to the therapy room. These small changes made me feel safe and content.

For me, it is essential when going for therapy of any kind that you are relaxed. This ensures that your therapy is as efficient as possible.

Filip, who was the therapist for the session, spent some time at the start finding out about how general life was during this time, and what could be improved in terms of Cerebral Palsy symptoms. I have been experiencing some acute nerve pain in my back for a couple of years now. I explained this to Filip, and he came up with some exercises that I could do to stretch that particular area of my back. He also gave me some preventative measures to take to help protect my lower back. For example, he suggested that I should try and build up my upper back alongside my abdominals as a way to compensate for the weakness in the lower back.

Most importantly, though, therapy felt NORMAL. Aside from the safety measures that were implementing the session felt as uplifting as ever. Filipe took the time to understand and assess what my needs were from the session and provided me with the tools required to achieve my goals in terms of my back injury. The explanation he offered about everything I asked was great for me as I like to have an in-detail understanding of why certain things happen. I got a lot from the session, and I am confident, in time, that the exercises that were provided to me will support me in the longer term. Filip assured me that if I have any questions or difficulties he is only a phone call or email away.

Personally, the therapy session was the most positive enjoyable experience that I have experienced since the commencement of the ‘lockdown’.

I would encourage anyone that needs a therapy session and feels well enough to do so to get in contact. The centre is there to provide support to those who need it. The centre is exceptionally safe, and anyone should not be concerned about attending, given the current COVID-19 circumstances. I want to take this opportunity to express my gratitude to Filip and all the Cerebral Palsy Scotland staff for all the help that they have provided me with recently and for the past 22 years.

Tags: Cerebral Palsy, guides, Physiotherapy, Therapy

Being able to stand is so important to me

Cerebral Palsy Scotland volunteer Marion

Marion talks about how she’s enjoying being able to stand in a standing frame once again.

At the start of 2020, way before the coronavirus hit us, I was told I was going to be moving into supportive accommodation.  Unfortunately, due to the support organisation’s rules I will need to use a hoist instead of a stand aid for all my transfers. For me, this was very difficult to get my head around after years of being able to stand, and always been dead anti hoist…   it was a bad word in my head, lol !

Also after years of my Bobath therapy and the therapists’ recommendations to promote weight-bearing I knew I needed to find myself a standing frame to assist me to remain able to stand, even though I will need to use a hoist.

So, I was straight on to Filip, my therapist at Cerebral Palsy Scotland, to ask him if he knew where I could get a suitable standing frame. He suggested a company down in England I could try, however he said there were one in the centre that I could borrow, and did I want to try it out? I jumped at the chance.

I had tried it out the week before lock-down at the centre and got on really well with it. I loved the feeling of being able to stand up straight.

Despite the centre closure, a few weeks ago, we were able to arrange with Filip for my brother to pick it up from the centre. It is now in our front room.

I have been loving using it on a regular basis, it’s so good for my back and legs. It is good for me to know that I can use it no bother, I have the strength in my legs to be able to stand. I can open up my back so that is very important to me. At the moment I’m building my time up,   I’m hoping that I can be in the frame for half an hour.

When I eventually move out into my new house, I hope I can use it regularly and then I will have no worries about losing my standing ability.

Tags: Cerebral Palsy, lockdown, Therapy

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