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Cerebral Palsy Scotland

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Apply for Better Start

Better Start is open to children with cerebral palsy age 2-14, with places funded by National Lottery Community Fund available for those living in the Greater Glasgow and Clyde health board area. This includes families from: East Dunbartonshire, East Renfrewshire, Glasgow City, Inverclyde, Renfrewshire and West Dunbartonshire.

We will be able to see a number of children from other areas if they are a strong fit for the programme, with support from other funders.

The project is fully-funded by the National Lottery Community Fund and others funders, so is free for families taking part.

What is Better Start?

Children and their families will work with our team of specialist therapists over the course of a number of sessions.

Therapists will support each child and their family to solve everyday problems – daily activities or things the child might find challenging because of their cerebral palsy.

Sessions will be personalised and tailored to suit each child’s individual needs, and those of the wider family and support network.

The aim is to ensure each child participating in Better Start becomes better connected and confident within their own family and school community, and feel more able to take control of their lives.

Sessions will also support families to help them know how best to support and enable their child to achieve to the best of their ability.

How can I apply for a place on Better Start?

Please get in touch to find out how you can get involved. Contact us on info@cpscot.org.uk or call 0141 352 5000.

Tags: Cerebral Palsy, Glasgow, Physiotherapy, Therapy

A life of Bobath therapy: Ewen’s story

Ewen and family

For Ewen McIntyre, soon to turn 60, the Bobath concept of therapy has been – and continues to be – a central part of his life.

Despite the challenges of living with athetoid cerebral palsy, Ewen’s life is full of friendships, fun and very much good fortune. Growing up in sunny California, Ewen continues to enjoy life and lives happily at Capability Scotland’s Upper Springland in Perth. And for the last seven years he has also worked directly with Cerebral Palsy Scotland in Glasgow.

Ewen, Ann and Donald
Ewen, Ann and Donald

Ewen’s parents, Ann and Donald, grew up as neighbours in Edinburgh and on their marriage in 1957 Ann joined Donald in the college town of Claremont, California, where Donald taught geology for most of his career and where Ewen was born in July 1961.

It was several months until they became aware that there was something unusual about Ewen’s physical development progress. In due course on a visit to a hospital in Los Angeles, this problem was diagnosed as a form of cerebral palsy. On explaining to the doctor they were shortly to be visiting Ewen’s grandparents in Scotland, they were advised to include an appointment at the Bobath Cerebral Palsy Centre in London, and in August 1962 were able to arrange a consultation with Mrs Bobath. They were encouraged by her assurance that the Bobath approach to physical therapy could help Ewen to progress if the family were able to make a return visit to work with her and her team the following summer.

Ann continues, “We were, of course, eager to follow up on this offer. Happily, when Ewen was two years old and thanks to a financial windfall, in 1963 and subsequent summers we were very privileged to benefit from these annual visits to London and enjoy and learn from Mrs Bobath and her helpful staff. Each visit in its own special way, was a remarkable happy and heart-warming experience.”

Ewen and Mrs Bobath
Ewen and Mrs Bobath

“Dr Bobath gave a strong medical background to the clinic and for both of them, Mrs Bobath’s work with patients and students was their supreme delight and a unique gift to families like our own who were adapting to life with someone challenged by cerebral palsy. As a couple, they had so much fun together, teasing each other with jokes and laughter while all their energy and interest was poured out on working in concert together to help their patients at their very busy clinic. And now sine 60 years on, this London centre continues to retain the Bobath name and its fame as an international teaching centre for physiotherapists.”

“In 1963, for us as new parents, these visits were always a time of learning, of interest, encouragement and pleasure as we tried to increase our understanding of how best we could help Ewen. And we were greatly cheered by spending time with other young families and adults with cerebral palsy who, despite their challenges, were able to live full and interesting lives. On some of our London visits we lodged at the home of a friend who lived just around the corner from the Bobath clinic, where the Queen’s horses went clattering by each morning while out on their daily exercise. Perhaps it was no wonder that Ewen himself came to be an enthusiastic horse rider and, in 1980, won an award at the National Cerebral Palsy Games in Texas, USA!”

Ewen horse riding
Ewen horse riding

“These annual summer visits led to a personal connection between our two families. When Mrs Bobath was invited to Los Angeles to deliver a lecture there we were greatly honoured to have the couple spend the weekend with us at our Californian home. We were delighted to share with them the fun of Donald leading us all on a geological visit to The Joshua Tree National Park. The unique and beautiful rock formations there were indeed of special interest to Mrs Bobath who enjoyed sculpture as a hobby.”

“In 1989, on Donald’s retirement from teaching, our family chose to return to our native Scotland so that Ewen might benefit from linking up with Capability Scotland’s Upper Springland centre here in Perth. This has indeed turned out to be an excellent move but some time past before we learnt of the existence of the Bobath Scotland centre in Glasgow.”

“So a new chapter has opened on Ewen’s life and our regular visits to the centre over the past seven years have become a highlight of learning and of helping Ewen to hold his own. He continues to benefit as well as to greatly enjoy his work with the skilled and patient senior physiotherapist and friend Philip Vervaeke, at what has wisely been renamed Cerebral Palsy Scotland. The therapy Ewen receives there is of superbly high quality. I would say that Ewen has a confidence that he probably wouldn’t have had otherwise. The lovely, cheerful way that Philip works with people, Ewen just really responds beautifully to him. And currently, in keeping pace with these difficult times, some helpful virtual therapy sessions are ongoing between Perth and Glasgow!”

Ewen at Upper Springland
Ewen at Upper Springland

“For Ewen as an adult, the object and the benefits from Bobath-style physiotherapy certainly succeeds in helping him hold his own by slowing the pace of further deterioration in his physical well-being. Ewen can sit up straight – though sometimes only on reminder! – he smiles and laughs his way through each day as a happy and physically comfortable person. And from the bottom of our hearts we are grateful to all who help him. For the important part which you play, a very big thank you to Cerebral Palsy Scotland!”

Tags: Bobath therapy, Capability Scotland, Cerebral Palsy, cerebral palsy scotland, Therapy

Life after lockdown – Survey Results

As restrictions have eased and some aspects of life have returned to something more like normal, how have things changed for people with CP?

Thank you to everyone who completed the survey about living with CP during the pandemic, and how it’s affecting your lives.

This is what the survey said:

  • 76% said that the Covid-19 situation had put more pressure on family life
  • Over 50% said that their family was more isolated as a result of the restrictions.
  • 71% reported that any care arrangements they had in place previously were not yet back to the levels they were pre-Covid.
  • 55% responded that their physical health had declined
  • 53% responded that their mental health had declined
  • 30% of the survey classed themselves as “shielding” although only 8% reported that they had received an official letter, reflecting how vulnerable people felt as a result of their condition.
  • 58% reported difficulty in accessing support from physiotherapy, occupational therapy and speech and language therapy with 51% only able to access healthcare services online or via telephone.
  • 79% of families have sent their children back to school but of those who haven’t, 20% felt that their school or nursery would not be safe and 20% reported that the school or nursery could not currently accommodate their child.
  • 82% of respondents were happy with the level of support they had received from Cerebral Palsy Scotland.

What does this tell us?

Following on from the results of the Impact of COVID for people with CP May 2020, these updated results show that people with CP and their families have found restrictions particularly difficult, despite the need to combat COVID-19.

  • People feel more isolated and unsupported
  • Care and health services have not yet been fully restored
  • More than half report decline in physical and mental health and wellbeing
  • Many cannot access the health services they need

Read the survey results, other peoples experiences and the conclusion in full here. 

The previous survey results from May 2020 are available Impact of COVID for people with CP May 2020.

CP Connect – therapy and support during Covid

During the Covid outbreak, Cerebral Palsy Scotland’s CP Connect service is offering free therapy and support to children and adults.

CP Connect aims to help address the physical and emotional needs of people with CP at this time, and help build strength, mobility and confidence.

Find out more and register for CP Connect.

Tags: Cerebral Palsy, coronavirus, covid-19, lockdown, Therapy

Jon McFarlane: My return to therapy

What’s it really like to have in person therapy again?

Last week, I returned to Cerebral Palsy Scotland for a therapy session with Filip.  I was given an allocated time, and when you arrive at the centre, you are required to call the number of reception as a means of avoiding touching the entry button. When you enter, your temperature is taken, and you have to go straight to the therapy room. These small changes made me feel safe and content.

For me, it is essential when going for therapy of any kind that you are relaxed. This ensures that your therapy is as efficient as possible.

Filip, who was the therapist for the session, spent some time at the start finding out about how general life was during this time, and what could be improved in terms of Cerebral Palsy symptoms. I have been experiencing some acute nerve pain in my back for a couple of years now. I explained this to Filip, and he came up with some exercises that I could do to stretch that particular area of my back. He also gave me some preventative measures to take to help protect my lower back. For example, he suggested that I should try and build up my upper back alongside my abdominals as a way to compensate for the weakness in the lower back.

Most importantly, though, therapy felt NORMAL. Aside from the safety measures that were implementing the session felt as uplifting as ever. Filipe took the time to understand and assess what my needs were from the session and provided me with the tools required to achieve my goals in terms of my back injury. The explanation he offered about everything I asked was great for me as I like to have an in-detail understanding of why certain things happen. I got a lot from the session, and I am confident, in time, that the exercises that were provided to me will support me in the longer term. Filip assured me that if I have any questions or difficulties he is only a phone call or email away.

Personally, the therapy session was the most positive enjoyable experience that I have experienced since the commencement of the ‘lockdown’.

I would encourage anyone that needs a therapy session and feels well enough to do so to get in contact. The centre is there to provide support to those who need it. The centre is exceptionally safe, and anyone should not be concerned about attending, given the current COVID-19 circumstances. I want to take this opportunity to express my gratitude to Filip and all the Cerebral Palsy Scotland staff for all the help that they have provided me with recently and for the past 22 years.

Tags: Cerebral Palsy, guides, Physiotherapy, Therapy

Welcome back!

Therapy at the Centre

The centre has had a facelift and has (finally) been re-branded fully as Cerebral Palsy Scotland.

We have installed some adaptations to the centre in order to ensure staff and your safety. (You will see that Katie has been “boxed in” with Perspex in reception!)

When you attend the centre there will be some new procedures to follow:

  • All visitor access is by prior appointment only.
  • We are asking everyone to arrive just before their appointment time and to call us on the telephone from the car park so that we can let you into the building without you having to touch door buttons and handles.
  • Unfortunately there are no waiting facilities in reception and we can’t offer you our usual teas/coffees/juice to welcome you in.
  • We will take the temperature of everyone who enters the building with a non-contact forehead thermometer.
  • Everyone will be asked to sanitise their hands prior to accessing any areas within the Centre. (We have sourced some branded automatic dispensers for this).
  • You will be shown directly to your designated therapy room which will have been thoroughly sanitised prior to their session.
  • The therapists will wear appropriate PPE (including face coverings and gloves) during therapy sessions.
  • We’re asking those that can, to wear a face covering during your time in the centre. If you don’t have a mask, we have disposable ones available.
  • We’re also asking that anyone attending for a therapy session only attends with one other parent/carer (unless otherwise agreed in advance) who should remain 2 metres apart from the therapists and staff whilst in the building wherever possible.

Appointments are having to be spread out so that we can ensure the rooms are fully cleaned between sessions. We have extra hand sanitiser, sprays, wipes and disposable paper towels available for your use during your visit and we are taking every precaution we can to enable us to resume our therapy sessions in person.

As expected, we do ask that you only attend the centre if you are well. If you or anyone in your household has coronavirus symptoms you must not attend the centre.  The most common symptoms are new:

  • continuous cough
  • fever/high temperature (37.8C or greater)
  • loss of, or change in, sense of smell or taste (anosmia)

A new continuous cough is where you:

  • have a new cough that’s lasted for an hour
  • have had 3 or more episodes of coughing in 24 hours
  • are coughing more than usual

A high temperature is feeling hot to the touch on your chest or back (you don’t need to measure your temperature). You may feel warm, cold or shivery.

If you’ve developed symptoms (however mild) in the last 7 days, you must stay at home for 7 days from the start of your symptoms and arrange to be tested. Do not go to your GP, pharmacy or hospital.

We hope that despite everything, you will still experience a very warm welcome when you come into the centre.  We are so pleased to be able to welcome people back and please do feel free to call if you have any questions about what the changes mean for you.

If you would like to enquire about appointments, please contact us HERE.

Tags: Cerebral Palsy, coronavirus, covid-19, Therapy

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Cerebral Palsy Scotland
Bradbury House
10 High Craighall Road
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t: 0141 352 5000
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