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Better Start – National Lottery Award

Child playing

We are delighted to announce that Cerebral Palsy Scotland has received a National Lottery award from The National Lottery Community Fund over three years to launch the Better Start programme.

Chief Executive of Cerebral Palsy Scotland, Stephanie Fraser, said:

In Cerebral Palsy Awareness Month, it is wonderful to be able to share this good news for children with CP and their families. Better Start  will walk beside families who have a child with CP to help them  know how best to help their child and enable children to take part, contribute and achieve what they want to achieve. Life with CP isn’t straightforward and we are grateful to be able to provide expert help to families which is made possible thanks to National Lottery players.

National Lottery Community Fund Logo

The new programme will launch in April, and if you have a child or support a child with CP aged 2 – 14 years in the Greater Glasgow and Clyde health board area, please get in touch to find out how you can get involved.

Better Start will support you and your family to solve everyday problems to ensure children with CP are better connected and confident within their own family and school community, and are better able to take control over their lives.

The National Lottery Community Fund, Scotland Chair, Kate Still, said:

In these uncertain times our priority is to ensure that National Lottery money continues to flow to charities, voluntary sector organisations and grassroots groups.  I would like to congratulate Cerebral Palsy Scotland on their award, theirs is an important project and will support people now and in the future when they can physically come back together to make great things happen in their community.

If you would like to find out more about Better Start, please contact us on info@cpscot.org.uk  or call 0141 352 5000.

You find out more about the The National Lottery Community Fund awards here.

Tags: Cerebral Palsy, Support for Children

Help us a build a picture of the impact of Covid-19 on people with CP

Image of hand raised

Help us show the impact of Covid-19 on people with cerebral palsy and their families

We find ourselves nearly a year into living with restrictions; schools are closed, face-to-face services are reduced, and we are all staying close to home.

We know all of these things have had a huge impact on people with cerebral palsy, their families and carers, and we want to ask you to complete a survey to help us build a national picture of what life is like now for the cerebral palsy community.

Through the two surveys we carried out in May and September last year, we gained really valuable information that helped us make sure our services helped people in ways that they needed. We were also able to share the information to inform government and policy makers what life was like for you.

 

How this survey will help

We plan to use this survey to:

  1. Make sure the services and support we provide are still working for you.
  2. Help us develop new services to address new challenges that may have arisen over the last few months.
  3. Tell key agencies like the Scottish Government or NHS about the issues faced by the CP community.
  4. Tell our funders about the additional pressures people are facing so that we can secure the resources we need to help people with CP and their families.

 

How to take part

Just click on the link below to take you straight to the online survey.

Click here to go to the survey

The survey will remain open until midnight on 19 February, but the more information we receive and the sooner we receive it, the more able we will be to deliver effective support to everyone that needs it.

The team at Cerebral Palsy Scotland really appreciate you taking the time to complete this survey. Thank you for your support.

Tags: Cerebral Palsy, coronavirus, covid-19, survey

CP Connect service awarded £5000 by The Crerar Trust

CP Connect therapy and support during the coronavirus outbreak

Our CP Connect service, which offers free therapy and support to children and adults with cerebral palsy during the coronavirus outbreak, has been awarded £5000 from The Crerar Trust.

CP Connect aims to help address the physical and emotional needs of people with CP at this challenging time, and help build strength, mobility and confidence.

The service is designed to help people in whatever way best suits them – it may be a conversation, an online chat, an onward referral, or it may be getting some virtual or in-person therapy. To find out more and sign up, visit our CP Connect webpage.

Commenting on the award, Virginia Anderson, Head of Fundraising and Communications at Cerebral Palsy Scotland, said:

“We would like to extend our sincere thanks to the The Crerar Trust who have provided much-needed funding for CP Connect. This is an important service that is continuing to help people with CP and their families during the coronavirus outbreak.”

Crerar Hotels operate hotels and inns based in Scotland, and more than 50% of the group’s distributable profits are donated to charities operating within areas where Crerar Hotels are based.

A wide variety of organisations recently received awards from the Trust, including those providing support across health, education, and social inclusion to people of all ages. Applications to the Trust will reopen in 2022.

Tags: Cerebral Palsy, cp, cp connect, crerar, crerar trust

Stephanie Fraser, CEO granted peerage

Advocating for policy change

Cerebral Palsy Scotland is delighted to congratulate Stephanie Fraser, CEO on being a granted a peerage by Her Majesty the Queen.

Stephanie Fraser

Ian Johnstone, chair of Cerebral Palsy Scotland said:

I’m sure that Stephanie will make an excellent member of the House of Lords and, no doubt, will continue to advocate for people with CP and other neurological conditions as well as take a keen interest in very many other areas.

At the end of a difficult year for people with CP, we are heartened that Stephanie will be able to represent our community at a UK wide level and wish her every success on this appointment.

Tags: cerebral palsy scotland

A life of Bobath therapy: Ewen’s story

Ewen and family

For Ewen McIntyre, soon to turn 60, the Bobath concept of therapy has been – and continues to be – a central part of his life.

Despite the challenges of living with athetoid cerebral palsy, Ewen’s life is full of friendships, fun and very much good fortune. Growing up in sunny California, Ewen continues to enjoy life and lives happily at Capability Scotland’s Upper Springland in Perth. And for the last seven years he has also worked directly with Cerebral Palsy Scotland in Glasgow.

Ewen, Ann and Donald
Ewen, Ann and Donald

Ewen’s parents, Ann and Donald, grew up as neighbours in Edinburgh and on their marriage in 1957 Ann joined Donald in the college town of Claremont, California, where Donald taught geology for most of his career and where Ewen was born in July 1961.

It was several months until they became aware that there was something unusual about Ewen’s physical development progress. In due course on a visit to a hospital in Los Angeles, this problem was diagnosed as a form of cerebral palsy. On explaining to the doctor they were shortly to be visiting Ewen’s grandparents in Scotland, they were advised to include an appointment at the Bobath Cerebral Palsy Centre in London, and in August 1962 were able to arrange a consultation with Mrs Bobath. They were encouraged by her assurance that the Bobath approach to physical therapy could help Ewen to progress if the family were able to make a return visit to work with her and her team the following summer.

Ann continues, “We were, of course, eager to follow up on this offer. Happily, when Ewen was two years old and thanks to a financial windfall, in 1963 and subsequent summers we were very privileged to benefit from these annual visits to London and enjoy and learn from Mrs Bobath and her helpful staff. Each visit in its own special way, was a remarkable happy and heart-warming experience.”

Ewen and Mrs Bobath
Ewen and Mrs Bobath

“Dr Bobath gave a strong medical background to the clinic and for both of them, Mrs Bobath’s work with patients and students was their supreme delight and a unique gift to families like our own who were adapting to life with someone challenged by cerebral palsy. As a couple, they had so much fun together, teasing each other with jokes and laughter while all their energy and interest was poured out on working in concert together to help their patients at their very busy clinic. And now sine 60 years on, this London centre continues to retain the Bobath name and its fame as an international teaching centre for physiotherapists.”

“In 1963, for us as new parents, these visits were always a time of learning, of interest, encouragement and pleasure as we tried to increase our understanding of how best we could help Ewen. And we were greatly cheered by spending time with other young families and adults with cerebral palsy who, despite their challenges, were able to live full and interesting lives. On some of our London visits we lodged at the home of a friend who lived just around the corner from the Bobath clinic, where the Queen’s horses went clattering by each morning while out on their daily exercise. Perhaps it was no wonder that Ewen himself came to be an enthusiastic horse rider and, in 1980, won an award at the National Cerebral Palsy Games in Texas, USA!”

Ewen horse riding
Ewen horse riding

“These annual summer visits led to a personal connection between our two families. When Mrs Bobath was invited to Los Angeles to deliver a lecture there we were greatly honoured to have the couple spend the weekend with us at our Californian home. We were delighted to share with them the fun of Donald leading us all on a geological visit to The Joshua Tree National Park. The unique and beautiful rock formations there were indeed of special interest to Mrs Bobath who enjoyed sculpture as a hobby.”

“In 1989, on Donald’s retirement from teaching, our family chose to return to our native Scotland so that Ewen might benefit from linking up with Capability Scotland’s Upper Springland centre here in Perth. This has indeed turned out to be an excellent move but some time past before we learnt of the existence of the Bobath Scotland centre in Glasgow.”

“So a new chapter has opened on Ewen’s life and our regular visits to the centre over the past seven years have become a highlight of learning and of helping Ewen to hold his own. He continues to benefit as well as to greatly enjoy his work with the skilled and patient senior physiotherapist and friend Philip Vervaeke, at what has wisely been renamed Cerebral Palsy Scotland. The therapy Ewen receives there is of superbly high quality. I would say that Ewen has a confidence that he probably wouldn’t have had otherwise. The lovely, cheerful way that Philip works with people, Ewen just really responds beautifully to him. And currently, in keeping pace with these difficult times, some helpful virtual therapy sessions are ongoing between Perth and Glasgow!”

Ewen at Upper Springland
Ewen at Upper Springland

“For Ewen as an adult, the object and the benefits from Bobath-style physiotherapy certainly succeeds in helping him hold his own by slowing the pace of further deterioration in his physical well-being. Ewen can sit up straight – though sometimes only on reminder! – he smiles and laughs his way through each day as a happy and physically comfortable person. And from the bottom of our hearts we are grateful to all who help him. For the important part which you play, a very big thank you to Cerebral Palsy Scotland!”

Tags: Bobath therapy, Capability Scotland, Cerebral Palsy, cerebral palsy scotland, Therapy

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