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A life of Bobath therapy: Ewen’s story

Ewen and family

For Ewen McIntyre, soon to turn 60, the Bobath concept of therapy has been – and continues to be – a central part of his life.

Despite the challenges of living with athetoid cerebral palsy, Ewen’s life is full of friendships, fun and very much good fortune. Growing up in sunny California, Ewen continues to enjoy life and lives happily at Capability Scotland’s Upper Springland in Perth. And for the last seven years he has also worked directly with Cerebral Palsy Scotland in Glasgow.

Ewen, Ann and Donald
Ewen, Ann and Donald

Ewen’s parents, Ann and Donald, grew up as neighbours in Edinburgh and on their marriage in 1957 Ann joined Donald in the college town of Claremont, California, where Donald taught geology for most of his career and where Ewen was born in July 1961.

It was several months until they became aware that there was something unusual about Ewen’s physical development progress. In due course on a visit to a hospital in Los Angeles, this problem was diagnosed as a form of cerebral palsy. On explaining to the doctor they were shortly to be visiting Ewen’s grandparents in Scotland, they were advised to include an appointment at the Bobath Cerebral Palsy Centre in London, and in August 1962 were able to arrange a consultation with Mrs Bobath. They were encouraged by her assurance that the Bobath approach to physical therapy could help Ewen to progress if the family were able to make a return visit to work with her and her team the following summer.

Ann continues, “We were, of course, eager to follow up on this offer. Happily, when Ewen was two years old and thanks to a financial windfall, in 1963 and subsequent summers we were very privileged to benefit from these annual visits to London and enjoy and learn from Mrs Bobath and her helpful staff. Each visit in its own special way, was a remarkable happy and heart-warming experience.”

Ewen and Mrs Bobath
Ewen and Mrs Bobath

“Dr Bobath gave a strong medical background to the clinic and for both of them, Mrs Bobath’s work with patients and students was their supreme delight and a unique gift to families like our own who were adapting to life with someone challenged by cerebral palsy. As a couple, they had so much fun together, teasing each other with jokes and laughter while all their energy and interest was poured out on working in concert together to help their patients at their very busy clinic. And now sine 60 years on, this London centre continues to retain the Bobath name and its fame as an international teaching centre for physiotherapists.”

“In 1963, for us as new parents, these visits were always a time of learning, of interest, encouragement and pleasure as we tried to increase our understanding of how best we could help Ewen. And we were greatly cheered by spending time with other young families and adults with cerebral palsy who, despite their challenges, were able to live full and interesting lives. On some of our London visits we lodged at the home of a friend who lived just around the corner from the Bobath clinic, where the Queen’s horses went clattering by each morning while out on their daily exercise. Perhaps it was no wonder that Ewen himself came to be an enthusiastic horse rider and, in 1980, won an award at the National Cerebral Palsy Games in Texas, USA!”

Ewen horse riding
Ewen horse riding

“These annual summer visits led to a personal connection between our two families. When Mrs Bobath was invited to Los Angeles to deliver a lecture there we were greatly honoured to have the couple spend the weekend with us at our Californian home. We were delighted to share with them the fun of Donald leading us all on a geological visit to The Joshua Tree National Park. The unique and beautiful rock formations there were indeed of special interest to Mrs Bobath who enjoyed sculpture as a hobby.”

“In 1989, on Donald’s retirement from teaching, our family chose to return to our native Scotland so that Ewen might benefit from linking up with Capability Scotland’s Upper Springland centre here in Perth. This has indeed turned out to be an excellent move but some time past before we learnt of the existence of the Bobath Scotland centre in Glasgow.”

“So a new chapter has opened on Ewen’s life and our regular visits to the centre over the past seven years have become a highlight of learning and of helping Ewen to hold his own. He continues to benefit as well as to greatly enjoy his work with the skilled and patient senior physiotherapist and friend Philip Vervaeke, at what has wisely been renamed Cerebral Palsy Scotland. The therapy Ewen receives there is of superbly high quality. I would say that Ewen has a confidence that he probably wouldn’t have had otherwise. The lovely, cheerful way that Philip works with people, Ewen just really responds beautifully to him. And currently, in keeping pace with these difficult times, some helpful virtual therapy sessions are ongoing between Perth and Glasgow!”

Ewen at Upper Springland
Ewen at Upper Springland

“For Ewen as an adult, the object and the benefits from Bobath-style physiotherapy certainly succeeds in helping him hold his own by slowing the pace of further deterioration in his physical well-being. Ewen can sit up straight – though sometimes only on reminder! – he smiles and laughs his way through each day as a happy and physically comfortable person. And from the bottom of our hearts we are grateful to all who help him. For the important part which you play, a very big thank you to Cerebral Palsy Scotland!”

Tags: Bobath therapy, Capability Scotland, Cerebral Palsy, cerebral palsy scotland, Therapy

Annual Review – what we’ve been doing to help

Child playing

Cerebral Palsy Scotland has published a round-up of how we have supported people with CP and their families over the past year and a half.

Our latest Annual Review sets out what the charity has achieved between April 2019-March 2020. We have also included a section on how we have helped people over the coronavirus pandemic.

Between April 2019 – March 2020 we provided a total of 990 individual therapy sessions for children and adults with cerebral palsy, supporting people to build skills, confidence and knowledge of their condition. We ran therapy-led groups for people of all ages, hosted a national conference and trained health professionals.

We also continued our work looking at the state of mental health support for people with cerebral palsy and how we can use Clinical Psychology to enhance our own services.

Most visibly, in April 2020, Bobath Scotland changed name to Cerebral Palsy Scotland.

The arrival of coronavirus and national restrictions has led to big changes for the charity, but we are determined to keep supporting the CP community during these strange times. We are providing online information and videos, virtual therapy sessions, and have created a safe environment to allow us to provide hands-on therapy sessions.

Commenting on the publication of the Annual Review, Stephanie Fraser, CEO of Cerebral Palsy Scotland said:

“I am really proud that Cerebral Palsy Scotland has achieved so much over the past 18 months and helped hundreds of people with CP build skills, knowledge and confidence. Rebranding the charity has been a big step forward in raising the charity’s profile so that we can support even more people with cerebral palsy across the country in the future.

“As always, I want to extend my sincere thanks to the CP community, donors and funders for their continued support as we work harder than ever before to provide services for children and adults with CP.”

Download Annual Review 2019-20

Tags: annual review, Cerebral Palsy

Watch again – Conference 2020

It was wonderful to bring together so many people at the online conference to talk about issues facing people with CP, their families and the people who support them.

It was a busy and useful day even if we could not come together in person. We talked about COVID recovery, education, virtual sessions, employment and more.

We know not everyone who registered was able to attend, or attend all of the sessions and others are keen to watch some again. They are now available on our website here – Watch again.

The online exhibition is still live, please take a few minutes to have a look at films from partners too.

Please do get in touch if you have any questions or would like to arrange a free post lockdown session.

Contact us on 0141 352 500 or HERE

You can keep up to date on news and information by signing up for the newsletter or following us on social media.

Tags: Cerebral Palsy, conference

Iain MacLeod: Wheels galore!

Writer Iain MacLeod talks about his experiences of growing up with cerebral palsy in the Western Isles.

Born in Stornoway, Lewis, Iain MacLeod now lives in the North East of Scotland. He has spent his life challenging expectations, studying, driving and living life in every way he can, including studying through the Open University.

Cherish each day and live it to the fullest extent possible. Every moment is precious, and not to be wasted. Life is for living, not waiting to live.

Iain tells the story of how he pursued his own learning and education, at a time when schools were very different than today. He also shares his advice for people with cerebral palsy and their parents.

I hope to inspire my readers to rise above the perceived limitations of disability and live life their way with grace, guts, and gusto!

Read some of Iain’s life story in Iain MacLeod – Wheels Galore blog

Visit Iain’s website and find out how to get a copy of his new book Wheels Galore!: Adaptive Cars, Wheelchairs, and a Vibrant Daily Life with Cerebral Palsy where he tells stories of his life with a kinds of wheels from wheelchairs to cars: https://www.wheelsgalore.scot 

Tags: Cerebral Palsy, Education

World CP Day: What can you achieve?

Cerebral Palsy Scotland volunteer Marion

The Biggest Achievement in My Life: Marion remembers the boost of achieving a goal and getting a qualification.

Our volunteer, Marion has written a blog about her experiences of studying a computing course at college while talking about how CP didn’t stop her from achieving her goal. Thank you to Marion for this wonderful blog, a perfect read ahead of World CP Day, read what she has to say:

Hello everyone,  I hope everyone is well  and keeping safe.

As Cerebral Palsy Day 2020 is approaching us,  I thought I would share with you  my greatest achievement in my life. This blog might encourage you to take up something new!

When I was 18 and when I finished school I went to my local College to do my ECDL (European Computer Driving Licence) .  My dad managed to get me on the course by talking to the College and they agreed to have me on the course. I loved being a student  with a disability as I was in a class with mostly able bodied students.

I enjoyed going to College  by myself with a support worker, I felt it was a great opportunity for me to do something independently. The College was very accessible and I liked going to the café and meeting my friend.

I got excellent help from the College’s unit for people with disabilities. The special needs advisor helped me set up my Intellikeys keyboard  so I was able to use their  PCs.  They even fought for me to get extra time for my exams, that took time,   but we got there in the end. Although I was later than all the rest of the students to take  my exams, I was the 3rd top student in the class.

I had always been interested in computers so the ECDL was right up my street. I started on my first computer when I was 3 years old when my Dad set me up on a BBC B computer.

When I did this course 18 years ago, there were 7 modules which included, Word  Processing, Spreadsheets, and Information and Communication.

Then after my ECDL was finished I got a lovely surprise and won The Provost’s Community Award  for Special Needs Adult, The prize was a trip to  London and while there I went to see Chitty Chitty  Bang Bang

I have used my skills that I have learnt from doing the ECDL to work in 2 offices,  and had my own little business making stationery.

Having Cerebral Palsy didn’t stop me from achieving a European Certificate for my computer work, and my advice to anyone who is thinking of doing something that you are wanting to do is to keep at it. You never know what you can do!

Marion Burns, 29th September 2020

Marion award photo

Tags: Cerebral Palsy, Education

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